{"id":"W1986333848","doi":"10.12927/hcpol.2013.23397","title":"Meeting the Privacy Requirements for the Development of a Multi-Centre Patient Registry in Canada: The Rick Hansen Spinal Cord Injury Registry","year":2013,"lang":"en","type":"article","venue":"Healthcare policy","topic":"Ethics in Clinical Research","field":"Medicine","cited_by":12,"is_retracted":false,"has_abstract":true,"ca_institutions":"University of Saskatchewan; University of Toronto; Praxis Spinal Cord Institute","funders":"Canadian Institutes of Health Research; Rick Hansen Institute; University of Saskatchewan","keywords":"Legislation; Personally identifiable information; Privacy policy; Information privacy; Statute; Business; Corporate governance; Computer security; Internet privacy; Public relations; Political science; Computer science; Law","routes":{"ca_aff":true,"ca_fund":true,"ca_venue":true,"about_ca":true,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"codex-gemma-dda1882f352a","candidate_categories":["metaresearch"],"consensus_categories":[],"category_scores_codex":[0.002639948,0.0001825154,0.0003132935,0.00006253445,0.0003913147,0.00002559699,0.0007189962,0.0001723356,0.000017836],"category_scores_gemma":[0.01686637,0.00009228074,0.00008153485,0.0003980233,0.0002807422,0.00003304938,0.0003669834,0.001484606,0.000007645455],"about_ca_system_candidate":true,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.00165818,"about_ca_system_score_gemma":0.01881141,"about_ca_topic_candidate":true,"about_ca_topic_consensus":true,"about_ca_topic_score_codex":0.8830841,"about_ca_topic_score_gemma":0.8450979,"domain_scores_codex":[0.9963233,0.0002915578,0.001137795,0.0003489806,0.00115592,0.0007424498],"domain_scores_gemma":[0.9919837,0.004590476,0.0005988678,0.00150593,0.001008867,0.0003121399],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"design_other","study_design_gemma":"observational","study_design_scores_codex":[0.003265732,0.000790205,0.2144421,0.00640512,0.0003461335,0.00002626532,0.02418412,0.00001241352,0.0005379613,0.007797559,0.02324638,0.718946],"study_design_scores_gemma":[0.004945176,0.001934368,0.8371394,0.0075287,0.0000792323,0.0000347118,0.05209964,0.001906712,0.003489055,0.005933853,0.0842549,0.0006542951],"study_design_candidate":"observational","study_design_consensus":null,"genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.6135624,0.000801525,0.00005149539,0.3820144,0.000186144,0.003097663,0.00002760565,0.00001265066,0.0002460885],"genre_scores_gemma":[0.9888278,0.0002764664,0.002521061,0.007161599,0.000240941,0.0003658607,0.000008321073,0.0000295503,0.0005684159],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.7182918,"threshold_uncertainty_score":0.991415,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.4302306073632585,"score_gpt":0.5510541575640479,"score_spread":0.1208235502007893,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}