{"id":"W2124461936","doi":"10.1177/1742395309104343","title":"The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness","year":2009,"lang":"en","type":"article","venue":"Chronic Illness","topic":"Optimism, Hope, and Well-being","field":"Psychology","cited_by":79,"is_retracted":false,"has_abstract":true,"ca_institutions":"Children's Hospital of Eastern Ontario; University of Ottawa","funders":"","keywords":"Psychosocial; Duchenne muscular dystrophy; Coping (psychology); Perception; Psychology; Qualitative research; Cognition; Developmental psychology; Lived experience; Interpretative phenomenological analysis; Cognitive appraisal; Medicine; Clinical psychology; Psychotherapist; Psychiatry","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.002861195,0.0003690318,0.0003821396,0.0004955567,0.003420782,0.002109841,0.0004795383,0.0009288003,0.00126225],"category_scores_gemma":[0.006996915,0.0003585739,0.0003215533,0.0003608175,0.005179708,0.002153421,0.002695087,0.002174483,0.0001048366],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.001378587,"about_ca_system_score_gemma":0.0009835791,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.00234915,"about_ca_topic_score_gemma":0.00423863,"domain_scores_codex":[0.9984092,0.001180651,0.00004438017,0.00006108345,0.0001324315,0.0001721955],"domain_scores_gemma":[0.9958559,0.002568015,0.0006932953,0.0001109282,0.0002285814,0.000543325],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"qualitative","study_design_gemma":"qualitative","study_design_scores_codex":[0.00007159556,0.00002600987,0.01093185,0.00008271676,0.00001240782,0.003152823,0.9794022,0.00004350988,0.0008885917,0.0009670464,0.0004188677,0.004002499],"study_design_scores_gemma":[0.000008080598,0.000195865,0.01385731,0.0001422489,0.00001708938,0.0052692,0.9746865,0.00008063221,0.0002781621,0.0004160897,0.005016473,0.00003226948],"study_design_candidate":"qualitative","study_design_consensus":"qualitative","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9955726,0.0009592459,0.0006276236,0.001072008,0.00004120066,0.00001469629,0.00002408513,0.000008716587,0.001679943],"genre_scores_gemma":[0.9989981,0.0003986206,0.0001677023,0.0001159703,0.000009311928,0.00001086634,0.00001048465,0.000003013239,0.0002859431],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.003420782,"threshold_uncertainty_score":0.01513165,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.008183616386349178,"score_gpt":0.2649688968238814,"score_spread":0.2567852804375322,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}