{"id":"W2422849217","doi":"10.1038/ejhg.2016.55","title":"Consent for newborn screening: parents’ and health-care professionals’ experiences of consent in practice","year":2016,"lang":"en","type":"article","venue":"European Journal of Human Genetics","topic":"Ethics and Legal Issues in Pediatric Healthcare","field":"Medicine","cited_by":41,"is_retracted":false,"has_abstract":false,"ca_institutions":"St. John’s Health Sciences Centre; University of Toronto; Newborn Screening Ontario; University of Ottawa; Ottawa Hospital; Institute for Clinical Evaluative Sciences; Children's Hospital of Eastern Ontario; Memorial University of Newfoundland","funders":"Canadian Institutes of Health Research","keywords":"Newborn screening; Informed consent; Family medicine; Health professionals; Parental consent; Medicine; Health care; Nursing; Psychology; Pediatrics; Alternative medicine; Political science; Pathology; Law","routes":{"ca_aff":true,"ca_fund":true,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.07240915,0.0004480323,0.0008147625,0.001273567,0.0167779,0.01278326,0.002194412,0.009807585,0.004283371],"category_scores_gemma":[0.2084771,0.001128891,0.0007900053,0.0009905678,0.02548155,0.009348305,0.01656677,0.0169026,0.0003407935],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.009547528,"about_ca_system_score_gemma":0.02169775,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.0112331,"about_ca_topic_score_gemma":0.01469115,"domain_scores_codex":[0.8835862,0.09719688,0.003984948,0.002428669,0.005698802,0.007104595],"domain_scores_gemma":[0.7476064,0.206392,0.01246138,0.005038908,0.009655904,0.01884544],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"qualitative","study_design_gemma":"qualitative","study_design_scores_codex":[0.00004252513,0.000042407,0.004039269,0.00004887476,0.000008637059,0.002098113,0.9814678,0.00003668372,0.0001564406,0.005616872,0.001776033,0.00466649],"study_design_scores_gemma":[0.00002440033,0.00006284678,0.002510207,0.0004829356,0.00001409461,0.004071472,0.9633206,0.0001350822,0.0002403885,0.00489078,0.02418371,0.00006350748],"study_design_candidate":"qualitative","study_design_consensus":"qualitative","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.855845,0.004657252,0.003937706,0.1035507,0.0009356584,0.0001619955,0.00006084641,0.00004893834,0.030802],"genre_scores_gemma":[0.9920822,0.0006855342,0.0007058681,0.004740071,0.00007369751,0.00006645887,0.00001897413,0.00002453595,0.001602667],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.07240915,"threshold_uncertainty_score":0.3829408,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.1514814632511129,"score_gpt":0.4488571048866484,"score_spread":0.2973756416355355,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}