{"id":"W2750945948","doi":"10.1016/j.bone.2017.08.032","title":"The FOP Connection Registry: Design of an international patient-sponsored registry for Fibrodysplasia Ossificans Progressiva","year":2017,"lang":"en","type":"article","venue":"Bone","topic":"Heterotopic Ossification and Related Conditions","field":"Medicine","cited_by":33,"is_retracted":false,"has_abstract":false,"ca_institutions":"Canadian Respiratory Research Network","funders":"","keywords":"Fibrodysplasia ossificans progressiva; Medicine; Disease registry; Population; Observational study; Patient registry; Family medicine; Pediatrics; Disease; Surgery; Internal medicine; Heterotopic ossification; Environmental health","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"codex-gemma-dda1882f352a","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.000172216,0.00007976603,0.0001255045,0.00003631349,0.0004980354,0.00008072752,0.0001866099,0.0001068385,0.00004149236],"category_scores_gemma":[0.0006936134,0.00005589992,0.00006704558,0.00002787158,0.0002480995,0.0001154661,0.00001641908,0.0001075043,0.000007326303],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.00003278837,"about_ca_system_score_gemma":0.0001031303,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.00001184076,"about_ca_topic_score_gemma":0.000004242881,"domain_scores_codex":[0.9992349,0.00003958124,0.000260049,0.0001789566,0.0001611574,0.0001253219],"domain_scores_gemma":[0.998509,0.00009073557,0.0003830922,0.0007474914,0.000190373,0.0000792317],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"design_other","study_design_gemma":"not_applicable","study_design_scores_codex":[0.01296265,0.003782761,0.02382648,0.0005436996,0.0019872,0.0002687183,0.003105311,0.0001427679,0.2471786,0.1097398,0.04898457,0.5474774],"study_design_scores_gemma":[0.01377883,0.003349789,0.340538,0.0009511428,0.0004964611,0.0009744609,0.002317356,0.02954958,0.07898802,0.003082691,0.5252824,0.0006913142],"study_design_candidate":"not_applicable","study_design_consensus":null,"genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9558392,0.0001403417,0.01531966,0.01446244,0.00175128,0.003172199,0.00017551,0.0001278725,0.009011528],"genre_scores_gemma":[0.9915884,0.00003279512,0.002383009,0.00004121619,0.0001457985,0.0002270626,0.00009715568,0.00001258943,0.005472024],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.5467861,"threshold_uncertainty_score":0.3830536,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.04297899242332632,"score_gpt":0.3337384755333649,"score_spread":0.2907594831100386,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}