{"id":"W2750945948","doi":"10.1016/j.bone.2017.08.032","title":"The FOP Connection Registry: Design of an international patient-sponsored registry for Fibrodysplasia Ossificans Progressiva","year":2017,"lang":"en","type":"article","venue":"Bone","topic":"Heterotopic Ossification and Related Conditions","field":"Medicine","cited_by":33,"is_retracted":false,"has_abstract":false,"ca_institutions":"Canadian Respiratory Research Network","funders":"","keywords":"Fibrodysplasia ossificans progressiva; Medicine; Disease registry; Population; Observational study; Patient registry; Family medicine; Pediatrics; Disease; Surgery; Internal medicine; Heterotopic ossification; Environmental health","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.02467923,0.0009627009,0.001316554,0.003264545,0.001911312,0.002862287,0.001595711,0.0007901241,0.008220474],"category_scores_gemma":[0.02273059,0.0007458015,0.0008122942,0.005925317,0.001488372,0.002502949,0.003051393,0.001305679,0.002125812],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.003471078,"about_ca_system_score_gemma":0.01522969,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.004823867,"about_ca_topic_score_gemma":0.006330364,"domain_scores_codex":[0.9755118,0.01553752,0.002690631,0.002890165,0.001904606,0.00146526],"domain_scores_gemma":[0.9748663,0.00432787,0.006951699,0.003828594,0.004756182,0.0052693],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"observational","study_design_gemma":"not_applicable","study_design_scores_codex":[0.02865556,0.005601998,0.878939,0.00079772,0.0005865343,0.0005161556,0.0028343,0.003120166,0.003248237,0.007124601,0.0212754,0.04730032],"study_design_scores_gemma":[0.03067521,0.02290094,0.8199361,0.0007971636,0.001858796,0.001665747,0.007151329,0.01732386,0.007133429,0.002877165,0.08736381,0.0003164274],"study_design_candidate":"not_applicable","study_design_consensus":null,"genre_codex":"empirical","genre_gemma":"methods","genre_scores_codex":[0.7766631,0.0005749669,0.0233912,0.001820074,0.0002927677,0.1378943,0.04124576,0.0003191937,0.01779863],"genre_scores_gemma":[0.7626269,0.0004281285,0.05232082,0.001621075,0.0005932417,0.1319405,0.04731609,0.0002866788,0.002866759],"genre_candidate":"methods","genre_consensus":null,"teacher_disagreement_score":0.02467923,"threshold_uncertainty_score":0.1305178,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.04297899242332632,"score_gpt":0.3337384755333649,"score_spread":0.2907594831100386,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}