{"id":"W2888217156","doi":"10.1007/s10897-018-0294-9","title":"Alone in a Crowd? Parents of Children with Rare Diseases’ Experiences of Navigating the Healthcare System","year":2018,"lang":"en","type":"article","venue":"Journal of Genetic Counseling","topic":"Family and Disability Support Research","field":"Psychology","cited_by":230,"is_retracted":false,"has_abstract":true,"ca_institutions":"University of British Columbia; University of British Columbia Hospital","funders":"Rare Disease Foundation","keywords":"Public health; Health care; Genetic counseling; Medicine; Human genetics; Family medicine; Nursing; Pediatrics; Genetics; Political science; Biology","routes":{"ca_aff":true,"ca_fund":true,"ca_venue":false,"about_ca":true,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"codex-gemma-dda1882f352a","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.0007561231,0.00009866347,0.0003224534,0.00006689257,0.00007892588,0.00001459079,0.0003439341,0.00005192252,0.00008255086],"category_scores_gemma":[0.00007217345,0.00006118145,0.00007763466,0.0002939285,0.0003429868,0.000046545,0.00002477939,0.0002608274,0.000002265567],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.00003610669,"about_ca_system_score_gemma":0.0002233021,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.000677114,"about_ca_topic_score_gemma":0.0001321949,"domain_scores_codex":[0.9979845,0.0002672217,0.0007851333,0.0001486321,0.0005710102,0.0002434706],"domain_scores_gemma":[0.998496,0.0001721453,0.0005067642,0.0002770441,0.0004508984,0.00009715369],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"observational","study_design_gemma":"observational","study_design_scores_codex":[0.0004751272,0.000157283,0.8944014,0.0001212852,0.00007756706,0.00002005781,0.09824327,0.00006959378,0.0001746661,0.0000116838,0.00006272997,0.006185294],"study_design_scores_gemma":[0.001223723,0.001240879,0.5433559,0.001282882,0.00004179344,0.0002665043,0.4517738,0.0001701004,0.0004908385,0.00004252711,0.000008480877,0.0001025874],"study_design_candidate":"observational","study_design_consensus":"observational","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9947857,0.004452509,0.0001593892,0.0001195906,0.0002134324,0.0002102358,0.00001122898,0.00000354656,0.00004437865],"genre_scores_gemma":[0.9994978,0.00003285251,0.0002393954,0.00003476146,0.0001685455,0.00001138299,0.000001345373,0.000009754524,0.000004166031],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.3535305,"threshold_uncertainty_score":0.2494907,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.02132504982808851,"score_gpt":0.3422202859338896,"score_spread":0.3208952361058011,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}