{"id":"W3136258044","doi":"10.1016/j.jpainsymman.2021.03.008","title":"The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review","year":2021,"lang":"en","type":"review","venue":"Journal of Pain and Symptom Management","topic":"Amyotrophic Lateral Sclerosis Research","field":"Medicine","cited_by":24,"is_retracted":false,"has_abstract":false,"ca_institutions":"University of Ottawa; Bruyère; McGill University Health Centre; Trillium Health Centre","funders":"","keywords":"PsycINFO; Medicine; CINAHL; Amyotrophic lateral sclerosis; Information needs; Palliative care; MEDLINE; Context (archaeology); Quality of life (healthcare); Thematic analysis; Disease; Family medicine; Needs assessment; Gerontology; Nursing; Qualitative research; Psychological intervention; Internal medicine","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.005858536,0.0008820473,0.00378497,0.005564648,0.0006040116,0.002933062,0.001161741,0.002289426,0.003248161],"category_scores_gemma":[0.02114894,0.0007197994,0.003077024,0.005868234,0.0007025874,0.002505746,0.001900805,0.001776749,0.0002285376],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.002210809,"about_ca_system_score_gemma":0.007294936,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.007578866,"about_ca_topic_score_gemma":0.02321408,"domain_scores_codex":[0.9974923,0.0008403632,0.0008532812,0.0001674533,0.0005182208,0.0001283208],"domain_scores_gemma":[0.9838972,0.01307523,0.001900321,0.00008760062,0.0008415441,0.0001981191],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"systematic_review","study_design_gemma":"systematic_review","study_design_scores_codex":[0.0001749623,0.00005481367,0.001201356,0.7745782,0.003129875,0.0001922599,0.0009505106,0.0001364038,0.0001825034,0.0004497454,0.003862277,0.2150872],"study_design_scores_gemma":[0.0001013697,0.00009290857,0.003513104,0.9456936,0.0111107,0.000495455,0.001145842,0.00005586199,0.0000821943,0.0003078023,0.03736348,0.00003769825],"study_design_candidate":"systematic_review","study_design_consensus":"systematic_review","genre_codex":"review","genre_gemma":"review","genre_scores_codex":[0.0006517271,0.9986272,0.00004416597,0.0002450944,0.00006697384,0.00006479798,0.00008107862,0.000001551663,0.000217508],"genre_scores_gemma":[0.004242897,0.9950825,0.0001791191,0.0002762531,0.00002684482,0.000076894,0.00006154836,8.763733e-7,0.00005313314],"genre_candidate":"review","genre_consensus":"review","teacher_disagreement_score":0.007578866,"threshold_uncertainty_score":0.03098327,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.02905656470394552,"score_gpt":0.2965160952948706,"score_spread":0.267459530590925,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}