{"id":"W4285464793","doi":"10.32920/ryerson.14646438.v1","title":"The lived experience of parents with children diagnosed with mucopolysaccharidosis waiting for enzyme replacement therapy","year":2021,"lang":"en","type":"preprint","venue":"","topic":"Family and Disability Support Research","field":"Psychology","cited_by":0,"is_retracted":false,"has_abstract":true,"ca_institutions":"Toronto Metropolitan University","funders":"","keywords":"Enzyme replacement therapy; Orphan drug; Mucopolysaccharidosis; Optimism; Medicine; Disease; Family medicine; Pediatrics; Psychology; Psychotherapist; Pathology","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":true,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.004132879,0.0005645017,0.0007625751,0.0008578308,0.01088443,0.004563902,0.001391897,0.001639894,0.001925745],"category_scores_gemma":[0.01075876,0.0007589856,0.0004025988,0.001044298,0.01258285,0.003921011,0.004158095,0.003828821,0.0002108881],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.006872462,"about_ca_system_score_gemma":0.005710857,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.05420133,"about_ca_topic_score_gemma":0.07462682,"domain_scores_codex":[0.9968299,0.002016688,0.0001001237,0.0002033077,0.0002892502,0.0005606663],"domain_scores_gemma":[0.9910862,0.005659962,0.0008940145,0.0002158711,0.0007150271,0.001428983],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"qualitative","study_design_gemma":"qualitative","study_design_scores_codex":[0.0000220373,0.00001091612,0.003632031,0.00003650001,0.000003076839,0.001323673,0.9931672,0.00001535819,0.0001130391,0.0004149293,0.0002743436,0.0009868889],"study_design_scores_gemma":[0.000001570472,0.00002332078,0.001318402,0.00004463072,0.000003367572,0.0005052972,0.9962341,0.00001150174,0.00003778192,0.00006886759,0.001742945,0.000008111658],"study_design_candidate":"qualitative","study_design_consensus":"qualitative","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9928569,0.001173958,0.0003843837,0.001938188,0.0000919805,0.00004157732,0.00007547221,0.00000965708,0.003428042],"genre_scores_gemma":[0.9973409,0.001016115,0.0002046953,0.0004988328,0.00001588849,0.00003571697,0.00003137912,0.000008488793,0.0008479465],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.05420133,"threshold_uncertainty_score":0.1077717,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.08094436424786403,"score_gpt":0.3738079425568278,"score_spread":0.2928635783089638,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}