{"id":"W4365144810","doi":"10.1097/01.hs9.0000928200.69096.c5","title":"5612992 SICKLE CELL HEALTH AWARENESS, PERSPECTIVES, AND EXPERIENCES (SHAPE) SURVEY: FINDINGS ON THE BURDEN OF SICKLE CELL DISEASE AND IMPACT ON THE QUALITY OF LIFE OF PATIENTS AND CAREGIVERS IN THE UK","year":2023,"lang":"en","type":"article","venue":"HemaSphere","topic":"Hemoglobinopathies and Related Disorders","field":"Medicine","cited_by":5,"is_retracted":false,"has_abstract":true,"ca_institutions":"","funders":"","keywords":"Medicine; Context (archaeology); Quality of life (healthcare); Disease; Computer-assisted web interviewing; Family medicine; Descriptive statistics; Burden of disease; Descriptive research; Gerontology; Nursing","routes":{"ca_aff":false,"ca_fund":false,"ca_venue":false,"about_ca":true,"invisible_to_affiliation_only":true},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.001058968,0.0001432706,0.0002855383,0.0007401941,0.0003949248,0.0007872717,0.0001992116,0.0003451514,0.003785515],"category_scores_gemma":[0.00493307,0.0001590623,0.0002428026,0.001184059,0.0002706657,0.0004769017,0.001661066,0.0003520251,0.0007193866],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.000781601,"about_ca_system_score_gemma":0.0008358159,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.02490192,"about_ca_topic_score_gemma":0.03239219,"domain_scores_codex":[0.9989371,0.0003666153,0.0002038982,0.00007999005,0.0002514677,0.0001609625],"domain_scores_gemma":[0.9971456,0.0006258482,0.0009098719,0.0001082889,0.0006615928,0.000548859],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"observational","study_design_gemma":"observational","study_design_scores_codex":[0.000201991,0.0000521549,0.9475051,0.0003315052,0.00004118272,0.0005864669,0.01107351,0.00007453829,0.0004398307,0.0001252872,0.01382502,0.02574345],"study_design_scores_gemma":[0.00001105642,0.00008327876,0.982841,0.0002340235,0.000009491283,0.0003676485,0.01087611,0.00004279621,0.00005986572,0.00001760715,0.005444721,0.00001248003],"study_design_candidate":"observational","study_design_consensus":"observational","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9916187,0.0003900344,0.00004072762,0.0004651283,0.00001295118,0.00005622159,0.004170932,0.000005377171,0.003239942],"genre_scores_gemma":[0.9948614,0.001011019,0.0001181641,0.0005401284,0.00001261544,0.0001440362,0.002206122,0.000004837682,0.001101749],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.02490192,"threshold_uncertainty_score":0.04951394,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.02599522399579153,"score_gpt":0.2985872115201608,"score_spread":0.2725919875243693,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}