{"id":"W4366539067","doi":"10.2196/41610","title":"Patients With Rare Diseases and the Power of Online Support Groups: Implications for the Medical Community","year":2023,"lang":"en","type":"article","venue":"JMIR Formative Research","topic":"Genomics and Rare Diseases","field":"Biochemistry, Genetics and Molecular Biology","cited_by":25,"is_retracted":false,"has_abstract":true,"ca_institutions":"","funders":"Genentech","keywords":"Thematic analysis; Coding (social sciences); Psychology; Qualitative research; Health care; Medicine; Medical education; Applied psychology; Family medicine; Clinical psychology","routes":{"ca_aff":false,"ca_fund":false,"ca_venue":true,"about_ca":false,"invisible_to_affiliation_only":true},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.008215989,0.0002247987,0.0003558972,0.00144753,0.005455103,0.004806056,0.0009863056,0.00159844,0.009201176],"category_scores_gemma":[0.05189143,0.000198973,0.0004305442,0.001214011,0.00393454,0.004612963,0.006144681,0.00194174,0.0003625978],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.001589066,"about_ca_system_score_gemma":0.003695189,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.00222648,"about_ca_topic_score_gemma":0.003401309,"domain_scores_codex":[0.9839192,0.0127218,0.0003831768,0.0004880354,0.001400244,0.00108747],"domain_scores_gemma":[0.9634521,0.02352503,0.003848679,0.000685419,0.001498854,0.006989937],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"qualitative","study_design_gemma":"observational","study_design_scores_codex":[0.0002858676,0.000914283,0.1444191,0.001001668,0.000117304,0.004382768,0.5321627,0.0001354587,0.0004789376,0.01417249,0.02510417,0.2768252],"study_design_scores_gemma":[0.0001399233,0.0004540928,0.06168415,0.001884964,0.00008660853,0.00414373,0.8738503,0.0004058047,0.000146317,0.01116414,0.0459624,0.0000775943],"study_design_candidate":"observational","study_design_consensus":null,"genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.87691,0.004689393,0.000891788,0.07848721,0.0005862695,0.0001455013,0.0001416535,0.00003144001,0.03811683],"genre_scores_gemma":[0.9946784,0.001358659,0.0004201268,0.002395931,0.0002339533,0.00007126782,0.00002680916,0.000007262325,0.0008076676],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.009201176,"threshold_uncertainty_score":0.04345083,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.02922557362294601,"score_gpt":0.3773457598157535,"score_spread":0.3481201861928074,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}