{"id":"W4387004669","doi":"10.1016/j.nmd.2023.09.001","title":"Introducing the Dysphagiameter: a novel patient-reported outcome measure for evaluating dysphagia in oculopharyngeal muscular dystrophy - from conceptual framework to initial development","year":2023,"lang":"en","type":"article","venue":"Neuromuscular Disorders","topic":"Dysphagia Assessment and Management","field":"Health Professions","cited_by":5,"is_retracted":false,"has_abstract":false,"ca_institutions":"McGill University; Montreal Neurological Institute and Hospital; Université Laval; Cégep de Jonquière; Centre for Interdisciplinary Research in Rehabilitation; Université de Sherbrooke","funders":"","keywords":"Oculopharyngeal muscular dystrophy; Dysphagia; Rasch model; Patient-reported outcome; Swallowing; Medicine; Physical therapy; International Classification of Functioning, Disability and Health; Focus group; Physical medicine and rehabilitation; Clinical psychology; Psychology; Rehabilitation; Developmental psychology; Nursing; Quality of life (healthcare); Surgery","routes":{"ca_aff":true,"ca_fund":false,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.01399815,0.001009217,0.001113938,0.0019043,0.000716444,0.002561973,0.001322582,0.001772178,0.001068345],"category_scores_gemma":[0.01650995,0.0003655515,0.002188547,0.001009757,0.001121016,0.002680361,0.002887543,0.002530411,0.0003843532],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.001701291,"about_ca_system_score_gemma":0.003025077,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.002400874,"about_ca_topic_score_gemma":0.007524951,"domain_scores_codex":[0.9902785,0.004857045,0.001627104,0.0004736403,0.002468368,0.00029539],"domain_scores_gemma":[0.9917474,0.003897336,0.001363543,0.0002116088,0.002453829,0.0003263763],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"design_other","study_design_gemma":"theoretical_or_conceptual","study_design_scores_codex":[0.001043632,0.002255162,0.4495762,0.002155019,0.001115558,0.0002683771,0.003820537,0.002083793,0.007223283,0.01212438,0.01394664,0.5043874],"study_design_scores_gemma":[0.001075474,0.01149768,0.8251367,0.00494473,0.001851998,0.003150345,0.006589469,0.02714542,0.01113612,0.01554929,0.09089314,0.001029625],"study_design_candidate":"theoretical_or_conceptual","study_design_consensus":null,"genre_codex":"empirical","genre_gemma":"methods","genre_scores_codex":[0.5878748,0.02112364,0.3077553,0.02316375,0.004770013,0.01538763,0.007708107,0.001375094,0.03084156],"genre_scores_gemma":[0.6025711,0.006641721,0.3691881,0.004743271,0.0009077866,0.009622089,0.002777085,0.0001894737,0.003359302],"genre_candidate":"methods","genre_consensus":null,"teacher_disagreement_score":0.01399815,"threshold_uncertainty_score":0.07403016,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.09893132791205272,"score_gpt":0.4132857732422261,"score_spread":0.3143544453301734,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}