{"id":"W4388789519","doi":"","title":"Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ&copy;)","year":2020,"lang":"en","type":"article","venue":"DOAJ (DOAJ: Directory of Open Access Journals)","topic":"Complement system in diseases","field":"Immunology and Microbiology","cited_by":0,"is_retracted":false,"has_abstract":true,"ca_institutions":"","funders":"","keywords":"Paroxysmal nocturnal hemoglobinuria; Medicine; Preference; Pediatrics; Internal medicine","routes":{"ca_aff":false,"ca_fund":false,"ca_venue":false,"about_ca":true,"invisible_to_affiliation_only":true},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.0471064,0.0004682995,0.0007907991,0.001839429,0.001898603,0.001610973,0.001240496,0.00071094,0.002750947],"category_scores_gemma":[0.04224947,0.0005078519,0.0008253102,0.001817639,0.001956854,0.002491235,0.003910302,0.001499778,0.000325029],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.005555057,"about_ca_system_score_gemma":0.01019016,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.005391756,"about_ca_topic_score_gemma":0.01658065,"domain_scores_codex":[0.9704264,0.02492897,0.001425495,0.0006464864,0.00160049,0.0009722594],"domain_scores_gemma":[0.9578917,0.03344556,0.002471034,0.0006842025,0.004707972,0.0007995233],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"qualitative","study_design_gemma":"qualitative","study_design_scores_codex":[0.0003564916,0.0003786977,0.0263847,0.01039102,0.0001351692,0.001204953,0.7753423,0.0007786637,0.003365173,0.00408731,0.01387553,0.1636999],"study_design_scores_gemma":[0.0002810734,0.0004034211,0.02229002,0.005357126,0.00008452259,0.0006046133,0.901678,0.001315541,0.002519679,0.005552542,0.05967283,0.0002406339],"study_design_candidate":"qualitative","study_design_consensus":"qualitative","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.9132892,0.004430387,0.03094404,0.01265918,0.000287817,0.0187695,0.006358183,0.0001040035,0.01315763],"genre_scores_gemma":[0.8964728,0.003616962,0.06325548,0.00370184,0.0000471931,0.02858044,0.001578028,0.000071047,0.002676211],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.0471064,"threshold_uncertainty_score":0.2491254,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.4491648084039873,"score_gpt":0.5598045596451269,"score_spread":0.1106397512411396,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}