{"id":"W4388822189","doi":"10.1016/j.rpth.2023.102264","title":"The World Federation of Hemophilia World Bleeding Disorders Registry: insights from the first 10,000 patients","year":2023,"lang":"en","type":"article","venue":"Research and Practice in Thrombosis and Haemostasis","topic":"Hemophilia Treatment and Research","field":"Medicine","cited_by":38,"is_retracted":false,"has_abstract":true,"ca_institutions":"McMaster University; Canadian Hemophilia Society","funders":"Bayer Canada; Grifols; Swedish Orphan Biovitrum; Regeneron Pharmaceuticals; Foundation for Women and Girls with Blood Disorders; Takeda Pharmaceutical Company; Bayer Corporation; CSL Behring; Novo Nordisk; Sanofi; Sanofi Genzyme; F. Hoffmann-La Roche; Roche; McMaster University; Pfizer","keywords":"Medicine; Pediatrics; Low and middle income countries; Developed country; Young adult; Developing country; Internal medicine; Population; Environmental health","routes":{"ca_aff":true,"ca_fund":true,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.004615757,0.0004322863,0.0007048492,0.003320085,0.0005856521,0.00207669,0.0007303666,0.0005924191,0.002745186],"category_scores_gemma":[0.01757506,0.0003953348,0.000726526,0.006425849,0.000211262,0.002209704,0.001637605,0.001308191,0.00188525],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.001176695,"about_ca_system_score_gemma":0.00388401,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.02643874,"about_ca_topic_score_gemma":0.02482493,"domain_scores_codex":[0.9961713,0.001068364,0.0009381515,0.0004332385,0.0009706512,0.0004182723],"domain_scores_gemma":[0.9853911,0.002227827,0.005657712,0.001160964,0.004015118,0.001547186],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"observational","study_design_gemma":"observational","study_design_scores_codex":[0.000237257,0.000113855,0.8543258,0.0003273535,0.0001794187,0.0002224848,0.0004465635,0.0002601748,0.00009339455,0.000563498,0.1110601,0.03217014],"study_design_scores_gemma":[0.00008577329,0.0001024984,0.9579459,0.0006585642,0.0001263584,0.001011092,0.000954141,0.0005730254,0.000138956,0.0002413359,0.038123,0.00003936797],"study_design_candidate":"observational","study_design_consensus":"observational","genre_codex":"dataset","genre_gemma":"empirical","genre_scores_codex":[0.4545882,0.01094119,0.002288931,0.008504796,0.0005317168,0.000623713,0.4994044,0.0004446691,0.02267237],"genre_scores_gemma":[0.5402714,0.01254965,0.004362888,0.002257054,0.0005754694,0.001525233,0.4350492,0.0002074005,0.003201612],"genre_candidate":"empirical","genre_consensus":null,"teacher_disagreement_score":0.02643874,"threshold_uncertainty_score":0.05256969,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.1247586761971132,"score_gpt":0.4156340739972695,"score_spread":0.2908753978001564,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}