{"id":"W4388822189","doi":"10.1016/j.rpth.2023.102264","title":"The World Federation of Hemophilia World Bleeding Disorders Registry: insights from the first 10,000 patients","year":2023,"lang":"en","type":"article","venue":"Research and Practice in Thrombosis and Haemostasis","topic":"Hemophilia Treatment and Research","field":"Medicine","cited_by":38,"is_retracted":false,"has_abstract":true,"ca_institutions":"McMaster University; Canadian Hemophilia Society","funders":"Bayer Canada; Grifols; Swedish Orphan Biovitrum; Regeneron Pharmaceuticals; Foundation for Women and Girls with Blood Disorders; Takeda Pharmaceutical Company; Bayer Corporation; CSL Behring; Novo Nordisk; Sanofi; Sanofi Genzyme; F. Hoffmann-La Roche; Roche; McMaster University; Pfizer","keywords":"Medicine; Pediatrics; Low and middle income countries; Developed country; Young adult; Developing country; Internal medicine; Population; Environmental health","routes":{"ca_aff":true,"ca_fund":true,"ca_venue":false,"about_ca":false,"invisible_to_affiliation_only":false},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"codex-gemma-dda1882f352a","candidate_categories":[],"consensus_categories":[],"category_scores_codex":[0.001702896,0.0001499646,0.0002651498,0.000304312,0.00128291,0.0002891386,0.0001607745,0.00007165672,0.00008805375],"category_scores_gemma":[0.002629732,0.00008227613,0.00004603873,0.001760114,0.0005818731,0.0003145124,0.0002287401,0.0005548931,0.00002344476],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.00007088506,"about_ca_system_score_gemma":0.00009568523,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.001973482,"about_ca_topic_score_gemma":0.01124736,"domain_scores_codex":[0.9975698,0.0003855265,0.0003207885,0.0003560826,0.0009068282,0.0004609764],"domain_scores_gemma":[0.9882812,0.01080142,0.0000954933,0.000372297,0.0002960072,0.0001535214],"domain_codex":null,"domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"observational","study_design_gemma":"observational","study_design_scores_codex":[0.005325057,0.001705945,0.5671293,0.0004028557,0.00105519,0.00006095166,0.008139475,0.0000054171,0.0006609774,0.004325822,0.1996993,0.2114897],"study_design_scores_gemma":[0.003397179,0.0008048252,0.5680455,0.0005855985,0.0001122114,0.000002719827,0.006980297,0.0004265004,0.001254895,0.004334667,0.4138502,0.0002053374],"study_design_candidate":"observational","study_design_consensus":"observational","genre_codex":"empirical","genre_gemma":"empirical","genre_scores_codex":[0.8569167,0.002298974,3.951654e-7,0.1232397,0.00006684291,0.000949255,0.0000345578,0.00002263767,0.01647096],"genre_scores_gemma":[0.965622,0.03114423,0.00004624721,0.0001333854,0.0001064428,0.00007656043,0.00007515258,0.0000204787,0.002775502],"genre_candidate":"empirical","genre_consensus":"empirical","teacher_disagreement_score":0.214151,"threshold_uncertainty_score":0.9867237,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.1247586761971132,"score_gpt":0.4156340739972695,"score_spread":0.2908753978001564,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}