{"id":"W4414579822","doi":"10.1007/s40271-025-00772-4","title":"Patients as Partners in Sickle Cell Disease Research in Africa: A Framework for Equitable Patient-Engaged Health Research","year":2025,"lang":"en","type":"article","venue":"Patient","topic":"Mental Health and Patient Involvement","field":"Health Professions","cited_by":1,"is_retracted":false,"has_abstract":true,"ca_institutions":"","funders":"National Human Genome Research Institute; National Institute of Mental Health; National Heart, Lung, and Blood Institute; University of Cape Town","keywords":"Disease; Work (physics); Focus (optics); Focus group; Qualitative research; Investment (military); Health services research; Grounded theory","routes":{"ca_aff":false,"ca_fund":false,"ca_venue":false,"about_ca":true,"invisible_to_affiliation_only":true},"retraction":null,"screen":null,"direct_labels":[],"prediction":{"model_version":"metacan-v3-hybrid-931329e0061c","candidate_categories":["metaresearch","open_science"],"consensus_categories":[],"category_scores_codex":[0.3504502,0.002429713,0.002012423,0.006817182,0.0276697,0.03689859,0.008580577,0.0197731,0.004055209],"category_scores_gemma":[0.1157424,0.002222282,0.00247343,0.003937495,0.09884892,0.04574234,0.06154019,0.01962948,0.001190921],"about_ca_system_candidate":false,"about_ca_system_consensus":false,"about_ca_system_score_codex":0.02244162,"about_ca_system_score_gemma":0.122395,"about_ca_topic_candidate":false,"about_ca_topic_consensus":false,"about_ca_topic_score_codex":0.004765438,"about_ca_topic_score_gemma":0.006147772,"domain_scores_codex":[0.4601922,0.5143306,0.006021732,0.006178803,0.005837866,0.007438882],"domain_scores_gemma":[0.7807854,0.1771458,0.007566623,0.006874384,0.007201936,0.02042602],"domain_codex":"methods","domain_gemma":null,"domain_candidate":null,"domain_consensus":null,"study_design_codex":"theoretical_or_conceptual","study_design_gemma":"theoretical_or_conceptual","study_design_scores_codex":[0.00005174256,0.0001403614,0.001063724,0.001643318,0.00004630089,0.00101293,0.3321799,0.0006267903,0.0002639687,0.6269108,0.005165108,0.03089501],"study_design_scores_gemma":[0.0001225366,0.000244304,0.0005046634,0.008222167,0.00007947632,0.0007115504,0.2365685,0.0007560796,0.0002975195,0.5250801,0.2273309,0.00008216685],"study_design_candidate":"theoretical_or_conceptual","study_design_consensus":"theoretical_or_conceptual","genre_codex":"commentary","genre_gemma":"empirical","genre_scores_codex":[0.02485548,0.03448289,0.2004119,0.6285002,0.003111203,0.006801987,0.0001414209,0.000197451,0.1014976],"genre_scores_gemma":[0.6465257,0.02251945,0.2635909,0.04356658,0.001100961,0.01364926,0.0001603885,0.0001598006,0.008726959],"genre_candidate":"empirical","genre_consensus":null,"teacher_disagreement_score":0.9914194,"threshold_uncertainty_score":0.8010105,"prediction_status":"machine_predicted_unvalidated"},"machine_scores":{"provisional":true,"baseline":true,"maturity_gate_passed":false,"score_opus":0.6265462688427615,"score_gpt":0.5989456181332338,"score_spread":0.02760065070952777,"validation_status":"score_only:v0-immature-baseline","note":"Baseline scores from an immature model (maturity gate not passed). Scores rank; they never assert a category."}}