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Record W2285767826 · doi:10.5935/1678-9741.20150041

Grown Up Congenital Hearts

2015· letter· pt· W2285767826 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueBrazilian Journal of Cardiovascular Surgery · 2015
Typeletter
Languagept
FieldMedicine
TopicCongenital Heart Disease Studies
Canadian institutionsnot available
Fundersnot available
KeywordsMedicineCardiologyInternal medicine

Abstract

fetched live from OpenAlex

The exploits and successes of cardiac surgery for congenital heart defects over six decades has created a new population of cardiac patients – the Grown Up Congenital Hearts (GUCHs) which has many names in different countries. From success-ful cardiac surgery comes the refinement of other specialties – paediatric cardiology, anaesthesia, intensive care, sophis-ticated imaging, who looks after the GUCHs, and where are the optimal medical services for the adults (adolescents) with congenital heart diseases. At least 90% of children born with such defects can be expected to reach adulthood in regions/countries or areas where there has been established good paediatric cardiac surgery. Indeed most lesions now can be treated with success and survival. The notion of “total cor-rection” should be dispelled as a dream of surgeons for many years. There are conditions such as closure of the persistent duct, certain ventricular septal defects and a few other simple defects which can be considered as cured of the need for future medical care. Most long-term survivors with congenital heart disease, particularly the complex, need expert medical care for life. Thus their needs must be recognised with provision of funded and staffed specialised units with necessary expertise, taking on the role of education of the problem in the region. Not every region needs a unit but with support services, research and provision of the various levels of needs of the patients.Numbers of units depend on the size and geographical features of the country or area as well as the size of the GUCH population. Too many units lead to loss of expertise and ed-ucation by diluting numbers. No one in any country knows the true numbers of GUCH patients. Predictions are not true anywhere. John Keith in the late 1950s recognised the need to have a service as his children survived, and so sent John Evans to the Toronto General Hospital to establish such a service, separate from paediatric cardiology in the Children’s Hospital. So wise. In actual fact not much was established and the concerned doctor left to be a business magnate. Joe Perloff, influenced deeply by Paul Wood in his London training, fascinated by congenital heart disease, recognised GUCH needs in Los Angeles, established with difficult a service as did the National Heart Hospital in London with the opening of an adolescent cardiac unit in 1975 receiving the patients from Dr Richard Bonham-Carter, operated by Dr David Waterston in Hospital for Sick Children (Great Ormond Street). Services grew into Grown Up Congenital Heart unit – called after Paul Wood and rebuilt following the destruction when the Heart Hospital merged into the Brompton Hospital. Establishing such a unit has always been difficult for different reasons in different countries and remains so. It was facilitated by having a funded Health Service. It was easy in Malta because the principal doctors wanted it. It remains diffi-cult in the USA where provision is only in a few isolated units. Recognition even that there is this sub specialty of cardiology has been nearly impossible in many countries; even when they have good paediatric cardiac services or because they have, has helped GUCHs since the paediatric cardiologists frequently reserve a parental right to continue looking after their patients into adulthood. It cannot be imagined that paediatricians would consider that an adult trained consultant could have a right to care for an infant. Most would not wish to do so in any spe-cialty, so why should the paediatricians consider their ability (right) to care for adults, because they know the anatomy. In Canada, Japan and a number of European countries including the United Kingdom, it has been recognised that there needs to be a national service controlled and funded for the specialty of Grown Ups with congenital heart abnormalities as part of adult cardiology which is useful as many will acquire the cardiovascular diseases of the population.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.007
metaresearch head score (Gemma)0.004
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow), Meta-epidemiology (broad), Research integrity, Insufficient payload (model declined to judge)
Consensus categoriesMeta-epidemiology (narrow), Research integrity
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.782
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0070.004
Meta-epidemiology (narrow)0.0020.001
Meta-epidemiology (broad)0.0080.020
Bibliometrics0.0020.001
Science and technology studies0.0000.001
Scholarly communication0.0000.001
Open science0.0010.000
Research integrity0.0010.004
Insufficient payload (model declined to judge)0.0010.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.033
GPT teacher head0.260
Teacher spread0.227 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it