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Record W3047868884 · doi:10.69554/wzzy1745

Does de-identification require consent under the GDPR and English common law?

2020· article· en· W3047868884 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueJournal of data protection & privacy. · 2020
Typearticle
Languageen
FieldMedicine
TopicPatient Dignity and Privacy
Canadian institutionsAgricultural Research Institute of Ontario
Fundersnot available
KeywordsIdentification (biology)LawCommon lawPolitical scienceBiology

Abstract

fetched live from OpenAlex

Data de-identification has many benefits in the context of the General Data Protection Regulation (GDPR). One of the recurring questions is whether consent is required to anonymise or de-identify data. In this paper, the authors make the case that no consent is required for anonymisation or other forms of de-identification under the GDPR, although additional conditions have to be met where special category data is anonymised. Further, under the English equitable duty of confidentiality, consent is generally not required if the de-identification is performed by the direct care team or on behalf of the direct care team; it is arguable that de-identification can also be performed by others outside of the direct care team, but less clear. The alternative would be special authorisation under section 251 of the National Health Service (NHS) Act.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.725
Threshold uncertainty score0.210

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.001
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.191
GPT teacher head0.352
Teacher spread0.161 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it