MétaCan
Menu
Back to cohort
Record W4410453345 · doi:10.2196/69411

Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study

2025· article· en· W4410453345 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

venuePublished in a venue whose home country is Canada.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueJMIR Formative Research · 2025
Typearticle
Languageen
FieldComputer Science
TopicResearch Data Management Practices
Canadian institutionsnot available
Fundersnot available
KeywordsPreprintCross-sectional studyEnvironmental healthGeographyMedicineComputer scienceWorld Wide Web

Abstract

fetched live from OpenAlex

Background: Digital platforms play a vital role in improving the availability and access to health research outputs, enhancing the engagement of policy makers and practitioners in the research processes. Despite their potential, it needs to be explored how digital platforms are used to manage and share health research datasets and publications, and to translate research findings among health networks or institutions in sub-Saharan Africa (SSA). Objective: This study aimed to assess the practices of health research data management, including sharing among researchers and their support staff within 3 large research networks for health innovations in SSA. Methods: A cross-sectional mixed methods survey was conducted across 3 research networks in SSA, showing experiences of sharing research data using digital platforms among researchers of 3 large research and innovation networks in SSA and affiliated institutions in the Global North. A total of 160 respondents completed a self-administered web-based questionnaire, and following data cleansing, the survey data were analyzed using both descriptive and inferential statistics. Results: Most respondents (91/160, 56.9%) used electronic data collection tools to collect research data. Almost half (79/160, 49.4%) of the respondents have a digital research data management platform. More than half of the respondents shared their research datasets (102/160, 63.8%), and 61.3% (98/160) shared research findings with the research community through different channels. Furthermore, most respondents shared their research datasets and research outputs through institutional data repositories (42/160, 26.1%), scientific conferences (123/160, 76.9%), and journal articles (110/160, 68.8%). This study found that parameters such as sex, professional category (health professional, information and communication technology professional, and data managers), and the role (researcher or student) influence health research data sharing within the community. The results show that the roles of the individual have the strongest association with the sharing of research datasets, followed by years of experience in research, then sex, and profession. Females were less likely to share their research datasets than males. Data managers and information and communication technology professionals exchanged datasets less frequently in the professional group, and the researcher's role was statistically significant in sharing research datasets. Conclusions: This study demonstrates that most researchers share research datasets and outputs through various channels. It was further found that digital platforms were essential in managing and sharing research datasets and publications since more than half (85/160, 53.1%) of the respondents have and use digital platforms. In addition, the study identified factors that influenced researchers' practices of sharing research datasets and publications. Furthermore, key gaps limit the sharing of these research datasets, including inadequate infrastructure, insufficient African dataset sharing platforms, a lack of institutional policy, and limited skills to use available platforms.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.121
metaresearch head score (Gemma)0.006
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Science and technology studies, Scholarly communication, Open science, Research integrity
Consensus categoriesScholarly communication, Open science
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.222
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.1210.006
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0050.012
Science and technology studies0.0010.002
Scholarly communication0.0070.052
Open science0.0200.028
Research integrity0.0000.003
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.635
GPT teacher head0.596
Teacher spread0.039 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it