Improving the care of Canadian adults with congenital heart disease.
Notice bibliographique
Résumé
Canadian children with congenital heart disease (CHD) have been well cared for in the past half-century. These childhood success stories have resulted in there now being approximately 100,000 Canadian adults with CHD. Few of these patients have been cured or have normal hearts, and most were left with problems that will need to be addressed later in life. Approximately 55,000 such patients need expert care because their conditions are so rare or complicated that cardiologists and other caregivers have not been trained to look after them. Moreover, these 55,000 Canadians face premature mortality, the need for further surgery or the prospect of major complications. They need expert care to optimize the quality of their lives and to help them to avoid premature death. There is no plan for the care of these patients. When they reached 18 years of age, they were moved into an adult care system that does not understand them, does not care about them and has not provided for their care. Provincial and federal Ministries of Health have not yet taken an interest in these patients. Canadian professionals have taken important steps in support of adults with CHD. They established the Canadian Adult Congenital Heart Network, and they developed a National Care Plan and management guidelines for their care. They have also made important contributions to the scientific literature, advancing the care of these patients. Waiting lists are much too long for adult patients with CHD. There are serious local and regional obstacles to the care of these patients because there are no provincial or regional plans for their care. Cardiologists who treat adult patients with CHD cannot earn enough in a fee-for-service system. There are serious human resource problems in Canadian Adult Congenital Heart Network centres that need to be addressed. There also needs to be greater coordination and integration between the pediatric and adult systems that care for these patients. Adults with CHD desperately need the help of the Heart and Stroke Foundations, leaders in the Canadian health care community and, ultimately, the Ministries of Health to help them protect their health and access expert care when needed in a timely way. The promises offered to them as children must also be honoured in their adult years.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,003 | 0,011 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,002 | 0,002 |
| Études des sciences et des technologies | 0,011 | 0,002 |
| Communication savante | 0,003 | 0,002 |
| Science ouverte | 0,002 | 0,006 |
| Intégrité de la recherche | 0,003 | 0,005 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,022 | 0,003 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».