O2‐01‐04: The meaning of activity for people with dementia: Examining the perspectives of dementia patients and their families
Notice bibliographique
Résumé
While it is assumed that persons with dementia benefit from being involved in meaningful activity, research examining this claim is limited. In particular, how individuals with dementia perceive this involvement is poorly understood, and how their families respond to their involvement has received little attention. This qualitative study examines what constitutes meaningful activity from the point of view of persons with dementia, and explores how they perceive its significance in their lives while considering the unique perspectives of their families. Participants were 20 community-dwelling persons with clinical dementia diagnosis (10 males and 10 females, ranging in age from 46 to 89) and 33 of their family members (7 males and 26 females, ranging in age from 6 to 79). Participants ranged in socioeconomic status, were from the west coast of Canada, and were predominantly Caucasian, though several were from ethnic minority groups including East-Indian, Native Indian and Chinese. Participants engaged in a series of in-depth semi-structured audio-recorded interviews over one year. During each interview participants were asked questions of personal significance relating to their participation in activities, their strategies for coping with and encouraging activity, and any other concerns or desires. Through analysis of the dementia patient and caregiver interview transcripts, common and contrasting themes were identified across both groups such as a perceived awareness of their condition and memory loss, a desire to continue or return to preferred activities, a need to stay informed, and an eagerness to contribute meaningfully through helping others. Furthermore, examining the perspectives of both dementia patients and their caregivers highlights the complex, albeit fragile, nature of family and community care networks. First-person accounts provide valuable insight into the struggles and frustrations, as well as the pleasures and enjoyments, experienced by community-dwelling individuals with dementia and their families. The participants' varying socioeconomic status suggests differing population groups share similar views surrounding dementia, and consider comparable activities to be meaningful. Understanding the meaning of activity from the perspectives of persons with dementia and their families may have important implications when designing community initiatives to encourage activity involvement and provide support.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,008 | 0,010 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,001 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,010 | 0,006 |
| Communication savante | 0,004 | 0,004 |
| Science ouverte | 0,001 | 0,005 |
| Intégrité de la recherche | 0,002 | 0,003 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,004 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».