The Quality of Dying and Death in Advanced Cancer from the Perspective of Bereaved Caregivers
Notice bibliographique
Résumé
There were two main research goals of this project: 1) to increase the interpretability of quality of dying and death measures by exploring how respondents generate their evaluations; and 2) to measure the quality of dying and death in advanced cancer patients and consider the influence of specialized palliative care and place of death on this outcome.To understand how respondents evaluate dying and death, 22 caregivers of deceased cancer patients were asked to take part in a cognitive interview protocol after formulating the 31 quality ratings that contribute to the total Quality of Dying and Death (QODD) questionnaire score. Qualitative content analysis was applied to transcribed interviews. Results suggested that evaluations were based on multiple different perspectives and standards of comparison. Findings highlighted that the family should be the targeted unit of end-of-life care and attention should be paid to helping families anticipate and prepare for the realities of the dying process.\tTo measure the quality of dying and death of patients with cancer and examine its relationship to receipt of palliative care and place of death, 402 caregivers of deceased cancer patients were interviewed with the QODD. Overall quality of dying and death was rated in the "neither good nor bad" to "almost perfect" range by 99.8% of caregivers. The lowest QODD subscale scores assessed symptom control and transcendence over death-related concerns. Multivariate analyses revealed that late or no specialized palliative care was associated with poorer death preparation and that home deaths were associated with better symptom control, death preparation, and overall quality of dying and death. Findings suggested that while home death was best, institutional deaths could also be of good quality, and also highlighted that symptom control and death-related distress are areas most in need of clinical attention. Overall, this research contributes to our understanding of the quality of dying and death construct, how it is evaluated, and the significant although small influence of location and palliative care on this outcome. Future directions include examination of quality of dying and death in other settings and the development of interventions that specifically target death-related distress.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».