P-119 Transition Experience from Pediatric to Adult IBD Care
Notice bibliographique
Résumé
Inflammatory bowel disease (IBD) has a peak incidence in the third decade of life but approximately 25% is diagnosed in childhood and adolescence. Pediatric patients must transition from family-oriented pediatric care to more independent adult care. A structured transition program may improve compliance and disease control. However, there is no consensus as to the best model for such transitions in IBD. We conducted a prospective survey of 33 pediatric patients transitioning to adult IBD care at McMaster Children’s Hospital in order to better understand their experiences and how their transition can be improved. We used validated instruments to assess transition readiness, satisfaction with medical care, self-perceived physical and mental health status, and health-related quality of life at transition. Nineteen (57.6%) pediatric IBD patients were included, of which 17 (89.5%) had Crohn’s disease and 2 (10.5%) had ulcerative colitis. The mean age at transition was 17 ± 0.5 years. The median disease duration was 3 years (range 2–14). Responses to the Inflammatory Bowel Disease Questionnaire (IBDQ) showed that quality of life at transition was excellent for 3 (15.8%), good for 14 (73.7%), and regular for 2 (10.5%). Compared to normative data from Canadian youth, SF36 scores from our subjects demonstrated decreased physical and social functioning, general health, emotional health and well-being, with increased pain and fatigue. Responses to the Transition Readiness Assessment Questionnaire (TRAQ) showed that only 3 (15.8%) were very confident about their skills for chronic condition self-management and only 5 (26.3%) felt very confident about their skills for self-advocacy and healthcare utilization. There was no correlation between disease duration and confidence in either of these skills. Mean domain scores from the Patient Satisfaction Questionnaire (PSQ) were 3.32 (SD 1.65) for general satisfaction, 2.99 (SD 1.83) for technical quality, 3.21 (SD 2.02) for interpersonal manner, 2.79 (SD 1.79) for communication, 2.71 (SD 1.78) for financial aspects, 2.97 (SD 1.76) for time with the doctor, and 3.01 (SD 1.83) for accessibility. There is a clear need for effective transition strategies that help pediatric patients move successfully to adult care. Although several strategies have been proposed to bridge these gaps, they have not been formally evaluated. These data assess the outcome of pediatric to adult transition under our current standard of care. The McMaster University/Hamilton Health Sciences IBD Clinic is introducing a formal transition program with access to a dedicated IBD nurse practitioner. Our outcomes will be reassessed once this program has been established.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,003 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,001 | 0,000 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,000 | 0,001 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,005 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».