P5-17-06: Pilot Study of a Questionnaire To Assess Impact of a Breast Cancer Diagnosis in Young Women on Their Relationship with Their Mothers.
Notice bibliographique
Résumé
Abstract Background Breast cancer in young women (≤ 40) is associated with greater morbidity, both physical and psychological, and mortality than in older women. For women in their 20s and 30s we would expect the mother daughter relationship to be uniquely impacted by breast cancer. However, no study has apparently looked at the effects of a breast cancer diagnosis in this situation. We completed a pilot study to assess the clarity, content and sensitivity of a questionnaire that will be used in a comprehensive assessment of this relationship in young women with breast cancer. Methods: A questionnaire with a mixture of Likert and open-ended items was developed after a literature review, obtaining input from an interdisciplinary panel of experts in psychology, medical oncology, research methodology, and breast cancer, and informal interviews with 3 young breast cancer survivors. Topics covered include demographics, nature of the mother-daughter relationship pre and post diagnosis and sources of support to daughters and mothers. Ten breast cancer survivors (≤ age 40 at diagnosis and > 36 months after their diagnosis) were asked to assess the questionnaire. Results: Ten patients, median age 37 years (range 31–52), participated in the pilot study. The average time to complete the questionnaire was about 30 minutes. No questions were reported to be upsetting. All but 1 patient indicated that the questionnaire was clear. The questionnaire was modified based on patient feedback. The number of items was reduced from 51 to 38. Items concerning, for example, nature of the mother-daughter relationship during childhood or teenage years, and openness to discussing personal gynecological matters prior to breast cancer diagnosis were ultimately excluded. A question inquiring about the most difficult issues the daughter faced after diagnosis was added. Some questions were changed from open ended format to relevant tick box options after reaching response item saturation during the pilot phase. Of the 10 patients, 8 felt close to their mothers in the year prior to their diagnosis. Seven patients reported turning to their mothers for support when they first learned of the diagnosis, and 4 stated their mother was the first person they turned to. All 10 felt their mothers were emotionally and practically supportive. Five indicated that their relationship got closer postdiagnosis. One patient reported that her mother was not coping, and 3 indicated that their mothers did not have adequate support. Many patients felt that health care providers could help mothers by being empathetic, providing information, and linking mothers with supports. Discussion: The mother-daughter relationship is an important source of support for young breast cancer survivors. Our questionnaire will be used in 100 women ≤ age 40 and within 3 years of diagnosis to further study the impact of breast cancer in a young woman on the mother-daughter relationship and to determine whether any intervention targeted to the mothers (eg. information or support groups) might be helpful. Citation Information: Cancer Res 2011;71(24 Suppl):Abstract nr P5-17-06.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,012 | 0,016 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,001 | 0,001 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,001 | 0,001 |
| Intégrité de la recherche | 0,001 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,004 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».