The Care of Immigrant Children with Haemophilia.
Notice bibliographique
Résumé
Abstract Canada, like many industrialised countries, has a history of accepting immigrants and a significant proportion of the population of major cities like Toronto is comprised of visible minority groups. The provision of health care to recently arrived immigrant families presents a number of challenges including difficulties in communication, economic inequalities experienced by migrating families and complications of underlying conditions not often seen in countries with well-resourced health care systems. Over the last decade the Hospital for Sick Children (HSC) has been referred a number of children with haemophilia who have recently immigrated. We reviewed the presenting features and subsequent management of recently immigrated children with haemophilia at HSC. We compared objective joint assessment scores of these patients at presentation to follow-up joint assessment scores. Joint assessment scores were performed according to published guidelines with a normal joint score being graded as zero and the maximum joint score (total scores of both elbows, knees and ankles) being 162. Seventeen patients with haemophilia (haemophilia A N=15, haemophilia B N=2) were identified representing 9.2% of all patients with haemophilia at HSC and is comparable to the proportion of people who have recently immigrated to the Toronto area from other countries over the years 1995 to 2001 according to census data. The patients were seen initially at HSC at an average age of 7.3 years (range 0.6 years to 12.2 years) and have been managed at HSC for an average of 3.1 years (range 0.5 to 9.3 years). Fifteen patients have severe haemophilia and of these patients, 7 had no definite previous treatment with clotting factor concentrate. Two patients had been exposed to infection with the hepatitis C virus. None of the patients were HIV virus positive. Joint assessment scores at initial presentation to HSC were available for 13 patients with a mean score of 9.4 (range 0 to 24). Two of the patients were not weight-bearing at presentation. The mean repeat joint assessment scores for ten of the recently immigrated patients was 7.8 (range 0 to 27). With specific treatment and rehabilitation the joints scores improved in the majority of patients. Addressing the challenges of providing health care to recently immigrated children with haemophilia in a culturally sensitive manner can lead to effective medical management and greatly improve joint function in these children.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,001 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,001 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,004 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».