130: Inequity Amongst Children's Developmental Conditions: Marketing Tactics in a Crowded Field
Notice bibliographique
Résumé
Evidence suggests that parents use the Internet to find information and resources for their children's health condition, yet web presence differs and some health conditions sell their information and resources more effectively than others. The purpose of this study was to compare the web content available in the google domain for five pediatric developmental disorders and to determine the characteristics and implications of these differences for health information and health service access. Research was conducted on five pediatric developmental disorders: CF, FXS, Down Syndrome (DS), Duchenne Muscular Dystrophy (DMD), and Spina Bifida (SB). These disorders were chosen because they each are: lifelong, incurable, multi-systemic and genetically-based. Content analysis was conducted using a coding sheet that allowed for consistent evaluation of the Google domain content retrieved via standardized search queries. Content analysis was conducted on pre-set dates and times, with the top 30 links being ranked and evaluated. Significant differences were seen between the disorders with respect to total number of hits, website category and website content. Averaged over two research sessions, DS and CF accumulated more hits overall (101,300,000 and 23,500,000 respectively) with the other disorders totaling to less than 5,100,000 hits each. For website category, CF and SB were found to have a higher proportion of National Organizations ranking in the top 30 hits; DS had the greatest proportion of local organizations, while DMD and FXS had the majority of their top 30 hits dedicated to health informational databases. A subjective analysis of tone was performed on the top 30 hits; >65% of the websites for both CF and DS depicted an overarching positive tone, while at least 50% of each of SB, DMD and FXS's hits were neutral. Of note, websites targeted the public as their audience as opposed to those affected by the condition. Although these disorders share many attributes, they present vast differences in both their web presence and web content. CF and DS present a more well-rounded and positive approach to the disease, while FXS, SB and DMD focus more on dissemination of disorder- related information. These disparities in resources and access to information among disorders hold many implications for practicing physicans as well as the health care system at large. Physicians should be mindful that more activist disorders may receive inequitable attention from the health care system. Improvements to tools and information are necessary to provide reliable and useful online resources to families for FXS, SB and DMD.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,010 | 0,024 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,004 | 0,003 |
| Études des sciences et des technologies | 0,006 | 0,005 |
| Communication savante | 0,005 | 0,004 |
| Science ouverte | 0,001 | 0,005 |
| Intégrité de la recherche | 0,001 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,006 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».