173: The Pediatric Developmental Passport: How to Ensure Families are Accessing the Right Care
Notice bibliographique
Résumé
The Pediatric Developmental Passport (Passport) is an ongoing initiative that aims to develop, assess and implement a tool that is designed to be used jointly by pediatricians and families with a child who has received a new developmental diagnosis of Autism Spectrum Disorder (ASD). Previous research projects have led to the design of the Passport. The aim of this phase of the study is to pilot test the passport in a pediatric setting to determine its usability among families with a child diagnosed with ASD between 0–6 years of age. A pragmatic randomized controlled trial was conducted. Children referred for a developmental assessment and diagnosed with ASD between 0–6 were randomized to receive the passport (intervention) or the placebo (control). All families were followed for one year. Primary outcome was time of first contact with developmental agency. Secondary outcomes included 1) length of time it takes families to meet the agency directly and 2) proportion of total recommendations accessed by families. Additional exploratory outcomes were 1) patient satisfaction and 2) impact of socio-economic status on the effect of the passport on primary and secondary outcomes. The passport is currently being evaluated at multiple pediatric sites. Preliminary results reveal forty-one percent of families were Non-Canadian born who predominantly came from Asia. Families were predominantly Caucasian (41%), Asian (29%), and African American (12%). The income status of families were evenly distributed with 29% families making less than $24000, between $50, 00–74,999 and above $100,000. Although all families in both groups accessed Applied Behavior Analysis (ABA) services, families from the passport group contacted services in significantly less time (9 days vs 14 days). The passport allowed pediatricians to discover that early intervention services and speech and language pathology (services recommended by developmental pediatricians) were more often accessed prior to a diagnosis due to community endorsement. The developmental pediatricians felt the passport helped increase their efficiency at communicating recommendations to families. All families were highly satisfied with the passport and reported it to reduce stress and anxiety. The passport is an innovative practical tool that has shown proof of concept and usability among families diagnosed with ASD and developmental pediatricians. Further evaluation of the passport at the general pediatric level is being planned. We would also like to adapt the passport into a mobile application or online application, as suggested by caregivers.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,009 | 0,026 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,002 | 0,001 |
| Communication savante | 0,002 | 0,002 |
| Science ouverte | 0,002 | 0,004 |
| Intégrité de la recherche | 0,002 | 0,003 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,024 | 0,004 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».