E067 Emotional health and well-being matters
Notice bibliographique
Résumé
Background: The most common co-morbidities amongst people with RA are mental health conditions, such as depression and anxiety, as evidenced by previous surveys and reports by NRAS. NRAS also understands, through interaction with its membership across the UK, that mental health and well-being are important issues for people living with RA and JIA. NRAS therefore partnered with City University to undertake a survey exploring the impact of RA and adult JIA on mental health. Methods: Following a focus group held in central London in early 2018 with a dozen NRAS members, NRAS and City University designed a survey to look at a range of aspects relating to emotional health and well-being, including validated questionnaires to compare data to existing research. The survey was open between May and July 2018, with participants recruited via NRAS newsletters, social media platforms, the NRAS HealthUnlocked forum and via healthcare professionals at rheumatology units. A total of 1,999 people participated in the survey and a final sample of 1,650 was used for analysis. Results: The survey found that people with RA and adult JIA were less satisfied with their life, believed the things in their life were less worthwhile, and were less happy. The proportion of people who scored poorly on life satisfaction and life worth was over 7 times greater in those with RA and adult JIA than the national average. Despite this, the survey found that 2 in 5 people had never been asked by a health professional about their emotional and psychological well-being, and 1 in 3 people who had requested or been offered support had never received it. Positive experiences that respondents shared of psychological support, such as GPs and rheumatologists being very supportive, the importance of family, and services offered by NRAS, demonstrate the benefits of good and appropriate support being available. Negative experiences, such as lack of health professional understanding about mental health, lack of understanding of RA by counsellors, and lack of personalised care demonstrate the future work that must be done to help adequately support people with RA and adult JIA. Conclusion: The survey has demonstrated the need to provide more effective self-management techniques of emotional as well as physical well-being, ultimately leading to overall improved health outcomes. In line with NICE guidelines, other additional support is needed, such as the availability of cognitive behavioural therapy and the implementation of mental health and well-being assessments at annual review. Further research is needed into specific areas, such as health inequalities and why people with severe mental health issues experience poorer disease activity, understanding why adults with JIA have poorer life quality than people with RA, and understanding the impact of psychological interventions for people with adult JIA. Disclosures: M. Bezzant: None. A. Bosworth: None. H. McBain: None.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,001 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».