Individual Abstracts

A. Aboriginal/First Nations cancer care 747 Inuusinni Aqqusaaqtara: An Inuit Cancer Project Savanah Ashton1, Tracy Torchetti2, Sipporah Enuaraq1 1Pauktuutit Inuit Women of Canada, Ottawa, Canada;2Canadian Cancer Society, Toronto, Canada Background/rationale or Objectives/purpose: Cancer is a leading cause of death among Inuit populations. Compared to the general population of Canada, Inuit have a higher incidence of cancer. Pauktuutit Inuit Women of Canada is developing culturally appropriate cancer awareness tools to support community health representatives, health care providers and Inuit cancer patients. Methodology or Methods: Pauktuutit and the Canadian Cancer Society are working together to develop meaningful ways to support better health across Inuit populations. Inuusinni Aqqusaaqtara - My Journey – is a suite of cancer resources developed for Inuit patients, caregivers, and health care providers with the aim of helping increase patient health literacy and understanding of the disease, their diagnosis and treatment. Along with existing multilingual cancer glossary, personal journal and information booklet, two new e-learning modules have also been created. One module engages patients and caregivers through videos, what to expect during the cancer journey and other helpful information.The other engages health care providers on cultural sensitivity, how to include the Inuit cancer resources into their practice and other key learnings. Impact on practice or Results: The goal is to increase knowledge about cancer, to improve communication between Inuit cancer patients and non-Inuit health care providers, helps to dispel fear of cancer, enhance support services, promote mental wellness for newly diagnosed Inuit cancer patients, and improve overall quality of life of Inuit communities. Discussion or Conclusions: Pauktuutit's cancer resources are working to build cancer literacy, increase screening rates, encourage lifestyle changes to reduce cancer incidence and develop platforms for support at every stage of the cancer journey for cancer patients, caregivers and health practitioners. 545 The structural challenges and concerns of racism causing distress for First Nations cancer patients- How do we achieve Truth and Reconciliation in oncology care? Carole Mayer1,2,3, Usman Aslam4, Roger Beaudin5, Mark Collins1, Yvette Corbierre6, Anna Grigull7, Doris Howell8,9, Tammy Maguire10, Mary-Jo Wabano6, Pamela Williamson10 1Health Sciences North Research Institute, Sudbury, Canada;2Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary, Calgary, Canada;3School of Social Work, Laurentian University, Sudbury, Canada;4Aboriginal Cancer Care Unit, Cancer Care Ontario, Toronto, Canada;5M’Chigeeng Health Centre, M’Chigeeng, Canada;6Wikwemikong Health Centre, Wikwemikong, Canada;7Mnaamodzawin Health Centre, Little Current, Canada;8Princess Margaret Cancer Center, Toronto, Canada;9Faculty of Nursing, University of Toronto, Toronto, Canada;10Noojmowin Teg Health Centre, Little Current, Canada Background/rationale or Objectives/purpose: Objectives/Purpose: Distress experienced by cancer patients is often associated with the disease and cancer treatments. Screening for distress is endorsed as the 6th vital sign in Canada as a means to proactively engage cancer patients in identifying their cancer distress for improved symptom management. This presentation will focus on the evaluation of the Mobile Interactive Symptom Assessment and Collection (mISAAC) pilot project where First Nations cancer patients were to complete a symptom report when a home visit was done by a health care provider. Methodology or Methods: Methods: The research protocol was approved by the Anishinaabek research review committee (September 2017) and the hospital research ethics board (October 2017). A total of six focus groups were conducted from December 2017 to February 2018 with three of the four pilot sites implementing mISAAC; one focus group with patients (n = 5), three focus groups with health care professionals (n = 23) and two focus groups with Elders/Traditional Healer (n = 10). Impact on practice or Results: Results: Feedback received from the focus groups went beyond the project of symptom screening and management. Concerns were raised about the structural challenges and issues of racism that amplify distress during the cancer journey in addition to the normal stressors experienced with a cancer diagnosis. Discussion or Conclusions: Conclusion/Clinical implications: The Truth and Reconciliation Commission of Canada released a report in 2015 with a call to action with recommendations. Psychosocial oncology programs across Canada are poised to strategically plan and advocate to improve cancer care for First Nations cancer patients based on these recommendations. 492 Understanding the importance of belonging and connection to the wellbeing of Indigenous Australians: Yarning circles and interviews with Indigenous Australians Kate Anderson1, Gail Garvey1, Lisa Whop1, Joan Cunningham2, Julie Ratcliffe3, Alan Cass4, Allison Tong5, Michelle Dickson5, Tamara Butler1, Kirsten Howard5 1Menzies School of Health Research, Brisbane, Australia;2Menzies School of Health Research, Melbourne, Australia;3Flinders University, Adelaide, Australia;4Menzies School of Health Research, Darwin, Australia;5University of Sydney, Sydney, Australia Background/rationale or Objectives/purpose: There are growing concerns that existing measures of wellbeing commonly used in cancer care do not index aspects of life that are relevant to Indigenous people. Using wellbeing tools that are not culturally-relevant to the target population have questionable value to cancer research, policy, and practice. We aimed to describe the perspectives of Indigenous Australians on what comprises wellbeing to inform the development of a culturally-appropriate measure of wellbeing for this population. Methodology or Methods: We conducted 37 yarning circles and 6 interviews with 359 Indigenous Australian adults to explore concepts of wellbeing. We used purposive sampling to ensure diversity in gender, age and geography. A thematic analysis was led by six Indigenous Australian researchers and guided by an Indigenous Advisory Group. Impact on practice or Results: Despite great diversity among Indigenous Australians, our analysis revealed a common centrality of belonging and connection with family, community, and culture to individuals’ sense of wellbeing. While other components of wellbeing emerged, this presentation focuses on the importance of belonging and connection, due to its particular relevance to cancer care. A strong sense of belonging and connection reinforces social and emotional strength and support and fortifies Indigenous identity and pride. Discussion or Conclusions: Including aspects of life such as belonging and connection in wellbeing measures, which are relevant to and value by Indigenous Australians, will enable better informed decision-making and patient-centred care provision for Indigenous people with cancer. There is scope for clinicians to harness the wellbeing benefits of a strong sense of belonging and connection to advance Indigenous cancer patients’ coping and healing. 211 Aboriginal and Torres Strait of A Tamara Butler1, Kate Anderson1, Gail Garvey1, Joan Julie Allison Lisa Whop1, Alan Michelle Kirsten 1Menzies School of Health Research, Darwin, University, Adelaide, University of Sydney, Sydney, Australia Background/rationale or Objectives/purpose: There are in cancer between the Indigenous and these is that quality of life and wellbeing often do not include of wellbeing relevant to Indigenous people and their of wellbeing. The of the review was to the of wellbeing relevant to Aboriginal and Torres Strait people in Australia to as Indigenous Methodology or Methods: We and to and in and to Indigenous and wellbeing. for were in a thematic Impact on practice or Results: This revealed wellbeing and and and and and mental Discussion or Conclusions: The a of wellbeing relevant to Indigenous these with Indigenous The that in to ensure meaningful wellbeing is a for a wellbeing that relevant to Indigenous an will to the development of culturally-appropriate measures across a of cancer. the used in will enable of research into practice and and of Indigenous Australian Women Cancer and their Cancer Care Kate Anderson1, Gail 1Menzies School of Health Research, Brisbane, University of Sydney, University of Sydney, Sydney, Australia Background/rationale or Objectives/purpose: and is used by cancer patients treatment. the and benefits of to cancer patients, communication is Little is about by Indigenous cancer patients. This and among Indigenous cancer and cancer care providers for this patient Methodology or Methods: Indigenous cancer the to interviews were conducted with these and cancer care were and and thematic Impact on practice or Results: used of this to their care Indigenous care providers knowledge of providers and with knowledge patients about Care providers a and with Indigenous patients as to patients Discussion or Conclusions: to communication about between Indigenous cancer patients and their cancer care providers is the care of of Indigenous with cancer in Canada, and the A review Tamara Butler1, Kate Anderson1, Joan Gail 1Menzies School of Health Research, Darwin, University, Brisbane, of Sydney, University, Melbourne, University, for Research, Sydney, Australia Background/rationale or Objectives/purpose: support to Indigenous cancer patients, information or for this and from support of their cultural caregivers of Indigenous cancer patients also the between to cancer care and Indigenous of wellbeing. is how to support caregivers and what their are in for Indigenous cancer patients. The aim of this review was to the care of caregivers of Indigenous with cancer in Canada and the Methodology or Methods: We and of to Indigenous in Canada, and the and cancer. was from research Impact on practice or Results: analysis key support knowledge and understanding of and awareness of communication between and with health care and to culturally-appropriate care. Discussion or Conclusions: The the for a care for caregivers of Indigenous cancer patients. have support and is to their wellbeing that these are and understanding the care of caregivers of Indigenous cancer patients will to health for Indigenous cancer patients. A of to Cancer Care among Indigenous in for Allison of Canada Background/rationale or Objectives/purpose: The in to experienced by Indigenous in Canada are and is about to cancer and to cancer care in A was conducted to what is about to cancer care among Indigenous in Canada, and where the cancer these are Methodology or Methods: and were for between and 2018 that to cancer care for Indigenous in and were in our Impact on practice or Results: Indigenous in Canada to care at the patient or at the and at the structural communication between and patients, and between and to care. of and among patients, and of providers, were to cancer care. understanding of and of to and structural among and were also to to cancer care. Discussion or Conclusions: Indigenous in Canada in cancer care. of cultural and informed care perspectives in practice improve to care among Indigenous and other populations. Indigenous of Cancer Care in the Kate Lisa Tamara Gail School of Health Research, Brisbane, Australia Background/rationale or Objectives/purpose: Despite in cancer and Indigenous Australians to cancer for this are to and with cancer have been as Indigenous Australians in the challenges cancer due to and and cultural This Indigenous Australian of cancer care at a hospital in the – on the to and with treatment. Methodology or Methods: Indigenous adults the hospital for cancer care were to in interviews conducted by a to explore patients’ of cancer care. analysis was to the that on patients’ to and engage with cancer Impact on practice or Results: patients were analysis that patients often due to and community home and with care also of and of culturally-appropriate cancer The and of was often by about Discussion or Conclusions: This challenges Indigenous people in the and with cancer care. The information how cancer to the and improve cancer for Indigenous The care of Aboriginal and Torres Strait people with cancer in the of Australia Gail 1Menzies School of Health Research, Brisbane, Australia;2Menzies School of Health Research, Darwin, Research Institute, Brisbane, Cancer Care Centre, Darwin, Australia Background/rationale or Objectives/purpose: Indigenous Australians a of cancer to care is a for cancer care and improved cancer We aimed to the of Indigenous people newly diagnosed with cancer, from the Methodology or Methods: Indigenous adults diagnosed with cancer the 6 and a cancer care in the were received the Care Assessment for Indigenous at and the of their for across four were used to the and for which commonly and how this across the two Impact on practice or Results: the common for the and an Indigenous support (n = the common and concerns about the of The of patients at one the in the to hospital to to and the to Discussion or Conclusions: Indigenous cancer patients commonly experienced due to about the associated with cancer. The of the and cancer care Social and Social in of of University of Calgary, Calgary, of Oncology, Cumming School of Medicine, University of Calgary, Calgary, Oncology, Calgary, of Cumming School of Medicine, University of Calgary, Calgary, Calgary, Research Background/rationale or Objectives/purpose: of in social their quality of Social information been in social in This to the between in to and explore the between and social in Methodology or Methods: = age = and = age = and and social and were between of working and across and their to social Impact on practice or Results: on = = and to complete the = There were in or social between of revealed a between and = = in not other were Discussion or Conclusions: is a key of and is in to for for have a to where for or their social This for to improve social in Social and are in A. for The Research at of and School of Medicine, at of and The University of Medicine, of Calgary, Calgary, Cancer Institute, for Toronto, Ontario, for The Research at Background/rationale or Objectives/purpose: are at for This research between social and that are often in and for social Methodology or Methods: = = and = = from three North and in the and and also measures of of for and Impact on practice or Results: were in and and higher in and = = and = with that not for in for in and also for these for Discussion or Conclusions: in and for for were often for not experienced at for and not from providers, and for of health professionals to and care of and of Unit, of and Health of of Unit, Background/rationale or Objectives/purpose: a higher for emotional and in the of the with also the of and the of on the their and their by the led to health professionals about the to and these patients. Methodology or Methods: We conducted a practice between February and We by a and a to clinicians to their Impact on practice or Results: the and the The that the emotional and are to due to the of are in of a to diagnosis. A the of a the the the and care are that the emotional and to Discussion or Conclusions: The of the great of the The a of the between of patients based on and into to a to the and of of to in for of that for The Research at of and School of Medicine, at of and The University of Medicine, of Calgary, Calgary, Cancer Institute, for Toronto, Canada Background/rationale or Objectives/purpose: social research that to such This research in to and for and Methodology or Methods: = = and = = from three North and of in the and and the and understanding of during social of to and to of overall and Impact on practice or Results: and and higher not were higher in = in and = for were for and for and for in for not Discussion or Conclusions: Research is to that for for that for particular for for that to in diagnosis of cancer in and what we from patients and their The Background/rationale or Objectives/purpose: Cancer in is often diagnosed a of or during which on the of the disease and on and for of have been this have on the and their This to the and of with cancer and their in diagnosis. Methodology or Methods: interviews were conducted in and their were and We used a thematic analysis to and Impact on practice or Results: Results: age = and age = were interviews with were among the diagnosis is during to the cancer and the the analysis the in about the disease in the Discussion or Conclusions: the that with cancer and their report distress to the of a diagnosis on other of distress during the and will used to build a to the screening and at the of of the of and with Cancer and from the at the Cancer Research Cancer Institute, of Background/rationale or Objectives/purpose: is a associated with the cancer or is a associated with The in and adults with and Methodology or Methods: with and = were in a and a and Distress at = Impact on practice or Results: patients = = their overall health as to about of adults and of at a a which with of patients endorsed of and a of of caregivers their received mental health at with of patients also endorsed changes in their to stressors and knowledge that on in of about in services, endorsed an in with adults a for about their health Discussion or Conclusions: and in with and research how concerns to support are for this population. The development and evaluation of a health for cancer University Background/rationale or Objectives/purpose: A lifestyle for cancer is to to patient and for the existing inform the development of a lifestyle for a of were with patients and Methodology or Methods: and on (n = health and of lifestyle and of a lifestyle was Health professionals (n = were to explore health in health resources lifestyle information and support tools were evaluation by and health (n = for and Impact on practice or Results: a for lifestyle information on a of in and at the cancer Health professionals were in a that to patients their care to health in practice. The resources were received with the the information as helpful and of the support tools were or Discussion or Conclusions: and in development is to issues of and in and and cancer patients to about their disease School of University, of Cancer of Medicine, Center, for and Psychosocial Cancer for Health Cancer Center, Research Center, Center, Background/rationale or Objectives/purpose: a disease is an a for when working with patients. One of the for is their of knowledge about patient such a The of this was to the for and its the of to and patients. Methodology or Methods: We conducted interviews for patients were diagnosed with cancer during The were as to disease the are and Impact on practice or Results: were as for to based on the disease and such a will the the six were as for such as the disease and about disease of adults and for in with about their Discussion or Conclusions: The patients or do not to about their disease were to for patients. are for the with disease their of of cancer patients in of and Background/rationale or Objectives/purpose: of the personal resources of cancer patients in is with a focus on the of during the in the with the aim of resources and with and Methodology or Methods: cancer patients of at the age of were diagnosed to the Impact on practice or Results: on the of our the will in and analysis of and of - of on in in the from for the on fear for with cancer have and is to of of - on the of with cancer with other people and are to to a The of the of to and Discussion or Conclusions: with cancer are not and do not their and their Health literacy in and adults with cancer and their from interviews with professionals of The University of Sydney, Sydney, for and The University of Sydney, Sydney, Research School of The University of Sydney, Sydney, Sciences Unit, Cancer Centre, of School of and Sydney, Sydney, Cancer of Research Unit, The University of Sydney, Sydney, Sydney, Health School of of and The University of Sydney, Sydney, Australia Background/rationale or Objectives/purpose: and adults with cancer engage in decision-making with their and clinicians where health literacy research is to explore health literacy in this We aimed to perspectives how and their are in of information and health literacy this and that clinicians for Methodology or Methods: interviews were conducted with professionals working with general and social were and to for and thematic Impact on practice or Results: professionals in communication associated social or lifestyle in a and of life used health literacy to knowledge about the and the their to a and support in Discussion or Conclusions: This research is the in the development of support tools to enhance and for that health literacy better understanding the and of communication and the of researchers develop informed and relevant tools and that in this Cancer of Calgary, Calgary, University, Background/rationale or Objectives/purpose: The for is in a of higher and and of gender, and age at diagnosis. This to of higher in this population. is that in at a This in among of in to Methodology or Methods: of (n = and (n = two were as of a their and by the were to for Impact on practice or Results: There was a of on for gender, and = such that a higher = = Discussion or Conclusions: that for higher in to with and will research explore that to higher in and their and of the of the Assessment a of University of University Health Center, of University of Canada Background/rationale or Objectives/purpose: of from will into and from to care. This to a to measure and patients’ the Assessment was We aimed to the and between patients’ and on the of the Methodology or Methods: patients from a hospital (n = diagnosed with cancer = or and their (n = were to complete the the were its was to the between patients’ and on the and were on Impact on practice or Results: The that the the The was to have overall with of and for patients and and with from to Discussion or Conclusions: The was to have and The support of the among patients and their emotional distress in associated with distress and Research of and University for the Background/rationale or Objectives/purpose: There is a of information about the of and cultural of emotional distress in in the value of to four is used and the of other on the and of the patient aim of this was to describe and of emotional distress in of with Methodology or Methods: caregivers were in the tools for were and Impact on practice or Results: The to was by the analysis = = = The of distress with = and = were Symptom were and were often the age the of hospital were with and Discussion or Conclusions: The to was for in to higher in the This the of a social of about their The was by to the research project The and of emotional distress in cultural and Research of and University for the Background/rationale or Objectives/purpose: of the the to this value on the and of patients aim of this was to describe and of the emotional distress of patients. Methodology or Methods: patients with cancer and were by the and by The analysis was used to the Impact on practice or Results: The to four was for patients and to three for patients The between the distress and were for = and = The was also in the distress associated with the disease and the were in a group of We that the distress and the age and the age and the were Discussion or Conclusions: The of distress in population include and and such of distress as the disease and the into to groups and to the support for was by to the research project of patients and with An A. of Cancer Canada Background/rationale or Objectives/purpose: The and of cancer in diagnosed the age of is in There is research how cancer patients and of information their diagnosis and and been conducted in the of cancer The aim of this is to explore how patients and information and support during and and their information are Methodology or Methods: This is to patients and from a our is how patients information their cancer diagnosis and treatment. Canadian are to in and analysis is Impact on practice or Results: We expect patients and to have information that are by and and we expect patients information and advocate for We also to information on which of support groups to this Discussion or Conclusions: identifying the information and support of patients and researchers our group develop at this and clinicians to these We will also these to in developing an for these patients. distress among of diagnosed with with and to the University Health Centre, of of of Canada Background/rationale or Objectives/purpose: of diagnosed with cancer are at for distress and have in have been to increase and emotional we to what to emotional We aimed to the of and to emotional and explore the between and in this Methodology or Methods: and of cancer patients on to cancer and one the of treatments. analysis was used to the of and to emotional were in and Impact on practice or Results: higher of to were on and to cancer were associated with higher of and in and and to and in and to Discussion or Conclusions: on and support the to enhance in of for cancer and improve sense of to emotional used by cancer Anna University, University, Background/rationale or Objectives/purpose: cancer are at of health with the challenges that and reduce their of developing health There is about the to which engage in and the This aimed to that to the of cancer in their Methodology or Methods: age were a were and analysis and was used to and and into Impact on practice or Results: which were into used and The a (n = (n = (n = and (n = The common (n = and screening (n = about health (n = and (n = Discussion or Conclusions: This is the to focus on of the to their health and wellbeing. inform the development of for in care. 359 of and measure of of a with are for cancer University Health Center, of of of of Canada Background/rationale or Objectives/purpose: This to a to support in The is a of the existing in the We aimed to and changes associated with this Methodology or Methods: were 6 and 6 in a and to and were to complete the and in four cancer diagnosis. distress and coping in and We social on the and were on and Impact on practice or Results: The was to in the to The pilot from and in as as in and coping to Discussion or Conclusions: This that the was and We that to in This aim to clinicians with a that to for their cancer by to better the of an and in with and during the three of oncology a protocol in of Calgary, of Calgary, Health Cancer Cancer Centre, of Psychosocial Calgary, of Calgary, of Oncology, Cumming School of Medicine, Calgary, Cancer Care of Calgary, Canada Background/rationale or Objectives/purpose: and of an and during the three of in patients diagnosed with and Methodology or Methods: Methods: This pilot will to newly diagnosed for two in

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