P141 Young Ambassadors Project: engaging patients attending a specialised young adult clinic
Notice bibliographique
Résumé
Abstract Background Emerging literature has highlighted that transition to adult services is a challenging time where many young patients are lost to follow up and disengage with health services. Furthermore, developmentally appropriate healthcare improves adherence and empowers young people. This recognises the changing biopsychosocial development needs of young people and advocates for a ‘young-person-friendly’ service. Aintree Hospital runs a young adult clinic based on the EULAR guidelines. Attending patients suggested that their positive experience could support and improve engagement of peers ready for transition. At the same time, they raised that the existing shared clinical area did not feel tailored to them given the lack of age-appropriate literature and lack of representation in the existing displays. This feedback led the team to a review of the service with the ultimate aim to improve patient engagement and satisfaction. Methods Using Plan-Do-Study-Act (PDSA) quality improvement methodology, a multidisciplinary healthcare team alongside a group of willing young adult patients (Young Ambassadors) identified a strategy to improve the young adult clinical area and facilitate transition peer support. Pilot funding was obtained from the Trust, with the aim to expand the methods to other specialities if successful. Results The team worked with the Young Ambassadors and a professional media company to produce ‘pop-ups’ featuring photographs of our young adult patients with positive inspirational messages. These were purposefully produced as mobile units rather than static posters to increase flexibility of use. We also improved the availability of age-appropriate literature in the waiting room (e.g. literature from Arthur’s Place, a magazine and social network for young adults with arthritis). Additionally, we developed a set of videos featuring three of our Young Ambassadors talking about their transition experience and how this affected their day-to-day lives. The videos will be available to patients ready to enter transition while still in children’s services. We envisage that this initiative will provide a patient perspective of living with chronic conditions, empower young people to take control of their health needs and therefore increase adherence, independence and promote positive career and life goals. Lastly, through the project and focus group sessions, our patients have already started a support network for young patients with rheumatic diseases. Conclusion Our young patients are keen to be involved in service development and wish to raise awareness of their life with chronic rheumatic diseases. We will measure the impact of our interventions through patient satisfaction questionnaires, group feedback sessions and by auditing patient attendance rates pre- and post-project. By working with our Young Ambassadors, we have successfully developed patient-led initiatives, tailored to young adult patients with the aim of improving future engagement and empowerment. Disclosures I. Soares None. C. Cotton None. L. Brinkley None. C. Estrach None.
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Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,008 | 0,012 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,001 | 0,000 |
| Études des sciences et des technologies | 0,007 | 0,002 |
| Communication savante | 0,004 | 0,002 |
| Science ouverte | 0,002 | 0,007 |
| Intégrité de la recherche | 0,002 | 0,003 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,016 | 0,002 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».