Abstract 2034: The young-onset colorectal cancer community speaks out about financial and emotional health
Notice bibliographique
Résumé
Abstract Colorectal cancer (CRC) is the third most commonly diagnosed cancer in the United States and the second leading cause of cancer deaths. The 5-year survival rate of advanced CRC is low, at 14%. As CRC continues to rise in young people (20-49), we and others have shown that these patients are diagnosed at advanced stages of the disease. As a result, many of these individuals are subjected to aggressive treatments. Young-onset (YO) CRC patients and caregivers face unique clinical challenges including fear and stress around the disruption of family and career developmental tasks and goals suggesting a need for additional psychosocial and financial support. A cross-sectional study, conducted in the form of an online survey, was launched to better understand the experiences around employment and the resulting financial and psychological stress of YO-CRC patients and caregivers. YO-CRC patients and survivors (N=884) and caregivers (N=203) who were diagnosed between the ages of 20 to 50 years old completed an online questionnaire that was based on established instruments including PROMIS, EORTC-QOL-30, and EORTC-CR-29.Our survey found that 75% of patients and survivors were employed full-time at the time of diagnosis and only half of them were working at the time of the survey. Similarly, two-thirds of the respondents who were working part-time at diagnosis were working at the time of the survey. This suggests that a significant number of YO-CRC patients are unable to work after diagnosis. Interestingly, a quarter of them have been without evidence of disease for 2-10 years. Not surprisingly, more than half of the patient and survivor respondents indicated that they feel financially stressed (56%), worry about the loss of their family's financial stability because of the cost of cancer care (54%), and worry about the financial problems they will have in the future due to their illness/treatments (66%). Of those who feel financially stressed, 35% reported significant feelings of sudden panic/anxiety. Similarly, 40% of caregivers reported feeling financially stressed. This could be connected to 40% of them reporting taking a leave of absence, quitting a job, or leaving school because of the patient's diagnosis.These survey results indicate a need for the YO-CRC community to have access to resources that reduce the burden of loss of employment and resulting financial and psychological stress. Given the reality that 75% of our respondents had children, we hypothesize that employment and financial stress are potentially correlated to compounding parental responsibilities. Further studies will investigate financial and psychological well-being specific to the impact of child-rearing during the cancer-related loss of employment. Programs tailored at the YO-CRC community should consider the unique challenges presented by potential employment changes, parenting roles, and the likelihood of financial and psychological stress. Citation Format: Danielle Peterson, Tamara Springer, Kimberly Newcomer, Never2Young Board, Ronit Yarden. The young-onset colorectal cancer community speaks out about financial and emotional health [abstract]. In: Proceedings of the Annual Meeting of the American Association for Cancer Research 2020; 2020 Apr 27-28 and Jun 22-24. Philadelphia (PA): AACR; Cancer Res 2020;80(16 Suppl):Abstract nr 2034.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,003 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,002 | 0,000 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,000 | 0,001 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,008 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».