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Enregistrement W3203300903 · doi:10.3899/jrheum.081180

Fibromyalgia Wars: Table 1

2009· review· en· W3203300903 sur OpenAlexvenueno aff
Frederick Wolfe

Notice bibliographique

RevueThe Journal of Rheumatology · 2009
Typereview
Langueen
DomaineMedicine
ThématiqueFibromyalgia and Chronic Fatigue Syndrome Research
Établissements canadiensnon disponible
Organismes subventionnairesnon disponible
Mots-clésMedicineFibromyalgiaTable (database)Physical therapyInternal medicineData mining

Résumé

récupéré en direct d'OpenAlex

Review Fibromyalgia WarsFibromyalgia (FM) is easy to recognize.Patients diagnosed with it have medically unexplained symptoms (MUS) 1 that are often severe and generally include widespread pain, fatigue, sleep disturbance, depressive symptoms, cognitive problems, irritable bowel syndrome, multiple somatic symptoms, and a single partially objective sign -tenderness on palpation 2 .Representing perhaps 2% to 4% of the adult population 3 , patients with FM incur substantial direct and indirect medical costs, including high rates of disablement.FM is a bitterly controversial condition.It pits patients, pharmaceutical companies, some specialty physicians, professional organizations, and governmental agenciesgroups with substantial political and economic power who benefit from the acceptance of FM -against the large majority of physicians, sociologists, and medical historians in what we call the "fibromyalgia wars."The wars are fought over a series of questions that concern the legitimacy of the diagnosis.In the balance is access to care and disability awards for patients; careers, publications, funding, and salaries for academic physicians; profits for pharmaceutical companies; political power that influences government, research agencies, and professional organizations; and rewards for the legal system.The consequences of the dispute are societal and are best understood in terms of medicalization 4 and social construction 5,6 . PATIENTS WITH FM AND THE BATTLE FOR SYMPTOM LEGITIMACYA central concern of patients with FM and similar MUS illnesses is disbelief: that their physicians and the medical profession don't believe them 7,8 ; that physicians see their symptoms as ordinary -something that everyone has at one time or another, not serious, psychosomatic -in your head, a mental problem or the result of depression [6][7][8][9][10][11][12] .Sensing disbelief, the commentaries of FM patients and their interactions with the medical system are filled with a sense of delegitimization, betrayal, and anger 7 .There is a lot at stake.Real diseases are compensable and recognized by insurance companies, proof offered to family, friends, and employers that the problem is real and that it is serious 13 .Against physician doubt, patients and support groups have marshaled powerful forces: the American College of Rheumatology (ACR) criteria for FM establishes FM as "a real diagnosis" 14,15 and the World Health Organization (WHO) provides FM ICD codes.Research on pain mechanisms and brain imaging studies demonstrate neurobiologic and imaging abnormalities 16 that can be considered the basis of their problems.Further support comes from the funding of research about FM by the National Institutes of Health (NIH), and the US Food and Drug Administration's (FDA) approval of drugs for the specific treatment of FM; and by mid-2008 a MEDLINE search would result in more than 5000 citations for FM.Support for FM is strong within professional organizations and academic centers that offer courses and symposia to physicians and the public, often with strong support from the pharmaceutical companies.FM support-group lobbying of the US Congress has led to endorsement and funding for FM research at the NIH and the Veterans Administration (VA).Lobbying at the state level resulted in at least 8 US state legislature or gubernatorial proclamations of "Fibromyalgia Awareness Day."Most recently, ubiquitous media advertising shows happy, upper middle class women made well by the new drugs.Not so real: medical skepticism.Physicians, however, are skeptical about FM 2,6,11,17,18 .In a survey of 400 general practitioners in the UK, 64% thought patients with MUS had psychiatric illnesses and 84% thought they had personality problems 10 .Wessely and Hotopf described FM as occupying "that grey area between medicine and psychiatry that is also occupied by chronic fatigue syndrome (CFS), irritable bowel syndrome, and many others" 19 .The British Medical Journal categorized FM as "non-disease ... [part of a] spectrum disorder" 11 .The medical historian Edward Shorter placed FM in the continuum of psychosomatic ill-See Explaining medically unexplained symptoms, page 679 www.jrheum.org

Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.

Comment cette classification a été obtenuedéplier

Prédiction machine sur la base complète

Imitation des enseignants

Ni prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.

score de la tête « metaresearch » (Codex)0,000
score de la tête « metaresearch » (Gemma)0,001
Version: metacan-v3-hybrid-931329e0061cStatut de validation: machine_predicted_unvalidated
Catégories candidatesaucune
Catégories consensuellesaucune
DomaineSignal candidat: aucune · Signal consensuel: aucune
Devis d'étudeSignal candidat: Sans objet · Signal consensuel: aucune
GenreSignal candidat: Commentaire · Signal consensuel: aucune
Score de désaccord entre enseignants0,038
Score d'incertitude au seuil0,127

Scores du classifieur distillé par catégorie (deux têtes)

CatégorieCodexGemma
Métarecherche0,0000,001
Méta-épidémiologie (sens strict)0,0020,000
Méta-épidémiologie (sens large)0,0020,001
Bibliométrie0,0090,007
Études des sciences et des technologies0,0000,000
Communication savante0,0010,001
Science ouverte0,0010,001
Intégrité de la recherche0,0010,001
Charge utile insuffisante (le modèle a refusé de juger)0,0380,010

Scores machine (provisoires)

Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.

Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.

Tête enseignante Opus0,045
Tête enseignante GPT0,351
Écart entre enseignants0,306 · la distance entre les deux têtes enseignantes sur ce seul travail
Statut de validationscore_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découle

Classification

machine, non validée

Prédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.

Les modèles n’ont appliqué aucune catégorie : rien dans la taxonomie ne correspondait à ce travail.
Devis d'étudeSans objet
Domainenon disponible
GenreCommentaire

Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».

En bref

Citations112
Publié2009
Routes d'admission1
Résumé présentnon

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