A Scoping Review of Patient Support Program Services Across Diverse Settings and Disease Areas Described from a People-Centered Perspective
Notice bibliographique
Résumé
Abstract BackgroundGovernments, private industries and not-for-profit organizations are increasingly investing resources in support programs for patients. These programs may provide self-management strategies enabling patients to manage their disease and medication regimen and/or access to medications, therapies and health services, with the goal to improve health outcomes. The objectives of this scoping review were to: (i) describe the characteristics of patient support programs (PSPs), for patients on medication regimens, (ii) identify subthemes that describe PSP services, and (iii) to classify the service subthemes, using an integrated people-centered (IP-C) perspective. MethodsPRISMA-ScR methodology and Covidence software were used to facilitate the review of 479 articles, and the selection and screening of 70 original research articles that described PSP services and their impact on clinical, humanistic and/or economic outcomes. A search of PubMed, Embase, CINAHL, Academic Search Ultimate, and Web of Science was conducted covering a 10 year period, from 2010 to 2020. The PSPs identified were organized into subthemes identified as part of an inductive process. The thematic areas were grouped into one of three people-centered categories that reflect the WHO vision for IPC health care. ResultsThe 70 articles reviewed, describe PSPs covering more than nine disease categories. The majority of the articles were published in North America, predominantly in the United States (26) and Canada (11), and also in Germany (6), the United Kingdom (6), China (4) and other countries (18). PSPs were funded and delivered by private drug or device manufacturers, government organizations, specialty pharmacies and also non-governmental groups (e.g., not-for-profit organizations), private hospitals, private payers (e.g., insurance companies) and various partnership types among these organizations. Fifty-six unique PSPs were identified that offered a range of services. Twenty-five PSP service subthemes were identified and these were each placed into one of three over-arching patient-centered categories: (i) access and equity services; (ii) quality and health services, and (iii) patient and caregiver empowerment and self-management services.ConclusionsPSPs offer various services that can be optimized and synergized to facilitate equitable, accessible, quality health services that support patient empowerment for the self-management of disease for improved health outcomes.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,026 | 0,088 |
| Méta-épidémiologie (sens strict) | 0,002 | 0,001 |
| Méta-épidémiologie (sens large) | 0,005 | 0,005 |
| Bibliométrie | 0,034 | 0,038 |
| Études des sciences et des technologies | 0,002 | 0,002 |
| Communication savante | 0,005 | 0,005 |
| Science ouverte | 0,003 | 0,003 |
| Intégrité de la recherche | 0,003 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,005 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».