Abstracts of 11th C1-inhibitor Deficiency & Angioedema Workshop
Notice bibliographique
Résumé
Dear Colleagues, Between 23 and 26 May 2019, the international scientific conference on angioedemas-conditions belonging to the group of orphan diseases and resulting in a life-threatening condition-will be held on the eleventh occasion in Budapest (2019.haenetworkshop.hu).This year, the word 'angioedema' has been added to the title of this event (organised every two years in Hungary starting from 1999), which now reads "11th C1-INH Deficiency & Angioedema Workshop".This designation better reflects the agenda of the 4-day long conference, because it has become a forum for discussing topics also on other bradykinin-mediated hereditary and acquired angioedemas, in addition to C1-inhibitor deficiency.Based on the 82 submitted abstracts, the programme includes 36 oral and 46 poster presentations.These will be supplemented by the lectures delivered by Patricia Pozo-Rosich (Barcelona, Spain) on the relationship between migraine and angioedema, as well as by Michael Kirschfink (Heidelberg, Germany) on the standardization of the laboratory methods applied for complement testing.Furthermore, Avner Reshef (Ashkelon, Israel) will summarize the prodromal symptoms of angioedema.By tradition, the agenda of the conference comprises consensus meetings and roundtable discussions intended to facilitate the adoption of international guidelines.This year, Anastasios E. Germenis will moderate the roundtable session "International consensus on the use of genetics in the management of hereditary angioedema", whereas Teresa Caballero will lead the discussion on "International consensus on the gynecologic and obstetric management of female patients with hereditary angioedema-updates".Further, the 'HAE Global Registry' Work Group (established to develop an international database on hereditary angioedema), led by Marco Cicardi, will hold its meeting here.The geographical distribution and professional background of the participants are variegated.Approx.330 delegates have registered from all over the world, from 39 countries in total.Researchers, medical professionals, drug development specialists, members of patients' organisations, and nurses will all be represented in the audience, which has become an active and creative community over the past two decades.The delegates of the International Hereditary Angioedema Nursing Organization will hold a consultative meeting on improving the stateof-the-art care of angioedema patients in the 'Nurse Meeting' session of the Workshop, under the moderation by Iris Leibovich-Nassi.Generous support by CSL Behring, Pharming, Biocryst, Kalvista and Sobi made it possible to organize a high level scientific conference.This educational activity is supported by an independent medical educational grant from Shire (Takeda).The support referred to above has again enabled us to present the "For HAE Patients" award, as well as to give the "Grant for Young Investigators" to four presenters under the age of 35 years.In 2019, the 'For HAE Patients' award goes to Teresa Caballero (Madrid, Spain), who will deliver a presentation in the festive session of the first conference day, and her accomplishments will be reviewed by Henriette Farkas (Budapest, Hungary) beforehand.The closing feature of the Workshop will be the presentation of the 'Grant for Young Investigators' to the four winners (elected by a 7-member jury) by Peter J. Späth, Chair of the Jury.Finally, Allen Kaplan will summarize for the audience all the topics and findings discussed at this Workshop.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,002 | 0,001 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,001 |
| Bibliométrie | 0,001 | 0,000 |
| Études des sciences et des technologies | 0,001 | 0,000 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,001 | 0,001 |
| Intégrité de la recherche | 0,002 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,048 | 0,020 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».