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Enregistrement W4385973242 · doi:10.1016/j.ekir.2023.08.010

Supporting Patient-Centered Pregnancy Counseling in Nephrology Care: A Semistructured Interview Study of Patients and Nephrologists

2023· article· en· W4385973242 sur OpenAlexaff
Andrea L. Oliverio, Maryn Lewallen, Michelle Hladunewich, Claire Z. Kalpakjian, Kassandra Weber, Sarah T. Hawley, Julie Wright Nunes

Notice bibliographique

RevueKidney International Reports · 2023
Typearticle
Langueen
DomaineMedicine
ThématiquePregnancy and Medication Impact
Établissements canadiensHealth Sciences CentreUniversity of TorontoSunnybrook Health Science Centre
Organismes subventionnairesNational Institute of Diabetes and Digestive and Kidney DiseasesMedical School, University of MichiganNational Institutes of HealthNational Center for Advancing Translational SciencesUniversity of Michigan
Mots-clésMedicineFamily medicineReproductive healthThematic analysisPregnancyKidney diseaseReproductive EndocrinologyReproductive medicineGenetic counselingNephrologyQualitative researchNursingInternal medicinePopulation

Résumé

récupéré en direct d'OpenAlex

BackgroundIndividuals with chronic kidney disease (CKD) are at increased risk of adverse pregnancy outcomes and are susceptible to disempowerment and decisional burden when receiving reproductive counseling and considering pregnancy. Nephrologists do not commonly counsel about reproductive health, and no tools exist to support patient-centered reproductive counseling for those with CKD.MethodsThirty patients aged 18-45 with CKD stages 1-5 who were assigned female sex at birth and 12 nephrologists from a single academic medical center participated in semi-structured qualitative interviews. They were asked about information needs, decision-support needs, as well as facilitators and barriers to reproductive health care and counseling. Thematic analysis was performed.ResultsFour main themes were identified: 1) assessing reproductive intentions; 2) information about reproductive health and kidney disease; 3) reproductive risk; and 4) communication and decision-making needs. Patients’ reproductive intentions varied over time and shaped the content of information needed from nephrologists. Patients and nephrologists both felt risk communication could be improved but focused on different aspects to improve the quality of this counseling; nephrologists focused on providing individualized risk estimates and patients focused on balancing risks with benefits and management. Patients desired nephrologists to bring up the topic of reproductive health and counseling in kidney clinic, and this is not commonly or systematically done currently.ConclusionsThis work highlights a critical need for more dialog about reproductive health in kidney care, identified differences in what patients and nephrologists think is important in communication and decision-making, and provides an important step in developing patient-centered reproductive counseling tools in nephrology. Individuals with chronic kidney disease (CKD) are at increased risk of adverse pregnancy outcomes and are susceptible to disempowerment and decisional burden when receiving reproductive counseling and considering pregnancy. Nephrologists do not commonly counsel about reproductive health, and no tools exist to support patient-centered reproductive counseling for those with CKD. Thirty patients aged 18-45 with CKD stages 1-5 who were assigned female sex at birth and 12 nephrologists from a single academic medical center participated in semi-structured qualitative interviews. They were asked about information needs, decision-support needs, as well as facilitators and barriers to reproductive health care and counseling. Thematic analysis was performed. Four main themes were identified: 1) assessing reproductive intentions; 2) information about reproductive health and kidney disease; 3) reproductive risk; and 4) communication and decision-making needs. Patients’ reproductive intentions varied over time and shaped the content of information needed from nephrologists. Patients and nephrologists both felt risk communication could be improved but focused on different aspects to improve the quality of this counseling; nephrologists focused on providing individualized risk estimates and patients focused on balancing risks with benefits and management. Patients desired nephrologists to bring up the topic of reproductive health and counseling in kidney clinic, and this is not commonly or systematically done currently. This work highlights a critical need for more dialog about reproductive health in kidney care, identified differences in what patients and nephrologists think is important in communication and decision-making, and provides an important step in developing patient-centered reproductive counseling tools in nephrology.

Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.

Comment cette classification a été obtenuedéplier

Prédiction distillée sur la base complète

Imitation des enseignants

Ni prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.

score de la tête « metaresearch » (Codex)0,000
score de la tête « metaresearch » (Gemma)0,002
Version: codex-gemma-dda1882f352aStatut de validation: machine_predicted_unvalidated
Catégories candidatesaucune
Catégories consensuellesaucune
DomaineSignal candidat: aucune · Signal consensuel: aucune
Devis d'étudeSignal candidat: Observationnel · Signal consensuel: Observationnel
GenreSignal candidat: Empirique · Signal consensuel: Empirique
Score de désaccord entre enseignants0,027
Score d'incertitude au seuil0,560

Scores Codex et Gemma par catégorie

CatégorieCodexGemma
Métarecherche0,0000,002
Méta-épidémiologie (sens strict)0,0000,000
Méta-épidémiologie (sens large)0,0000,000
Bibliométrie0,0000,000
Études des sciences et des technologies0,0000,000
Communication savante0,0000,000
Science ouverte0,0000,000
Intégrité de la recherche0,0000,000
Charge utile insuffisante (le modèle a refusé de juger)0,0000,000

Scores machine (provisoires)

Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.

Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.

Tête enseignante Opus0,018
Tête enseignante GPT0,322
Écart entre enseignants0,304 · la distance entre les deux têtes enseignantes sur ce seul travail
Statut de validationscore_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découle

Classification

machine, non validée

Prédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.

Les modèles n’ont appliqué aucune catégorie : rien dans la taxonomie ne correspondait à ce travail.
Devis d'étudeObservationnel
Domainenon disponible
GenreEmpirique

Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».

En bref

Citations8
Publié2023
Routes d'admission1
Résumé présentoui

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