Digital Communication at End-of-Life: Exploring Attitudes and Experiences Before and After the End of the COVID-19 Pandemic (Preprint)
Notice bibliographique
Résumé
BACKGROUND End-of-life communication is a complex and sensitive topic that necessitates careful consideration. The advent of digital technology has transformed the landscape of end-of-life communication, offering new possibilities and challenges. From video calls to online memorials, technology has revolutionized how we approach death and dying. However, there is a limited understanding of the attitudes and experiences surrounding digital communication at the end of life, particularly between individuals and their loved ones as existing research mainly focuses on communication between patients and clinicians, overlooking the broader aspects of communication at end of life. OBJECTIVE This study aims to explore individuals' attitudes and experiences regarding digital communication during end-of-life situations through an interactive installation. The study also includes an examination of changes in people's perceptions and behaviors toward digital communication during times of dying before and towards the end of the COVID 19 pandemic [1]. The research aims to provide insights into the role of technology in facilitating meaningful connections, supporting the grieving process, and supporting end-of-life experiences. METHODS In this qualitative study, data on participants' sentiments regarding digital communication during end-of-life situations were collected through an interactive installation "Time Moving", mounted in the exhibit “Dying.exhibits” before (January 2020) and towards the end of the COVID-19 pandemic (January 2023), in Toronto, Canada as part of the DesignTO festival. DesignTO is an annual design festival held in Toronto, Canada organized by a non-profit arts organization dedicated to celebrating design's role in creating a better world [2]. Participants were encouraged to share their thoughts by writing responses on postcards in response to the question: "How do you feel about communicating digitally during times of dying?" Data analysis involved an inductive approach, with a sample size of 80 postcards gathered from 2020 and 51 postcards from 2023. RESULTS Participants had a range of perspectives on digital communication in end-of-life situations. Some found it helpful and appreciated the ability to connect virtually, especially when physical presence was not possible. Others expressed concerns about the performative nature and lack of emotional depth of digital interactions. The findings reveal the complex nature of acceptance, adoption, and the impact of digital communication on end-of-life experiences. There was, however, a pattern which suggests that the Covid-19 pandemic influenced a shift towards increased acceptance of digital communication as a practical option, accompanied by feelings of sadness and resignation. These findings contribute to our understanding of the evolving use and attitudes towards digital communication in end-of-life experiences. CONCLUSIONS In conclusion, this study highlights the complex role of digital communication in end-of-life situations and its impact on the evolving nature of these experiences. The results highlight the need for sensitivity towards diverse perspectives in introducing or using digital communication at end of life. The study enhances our understanding of technology's influence on end-of-life communication, considering both the benefits and limitations.
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Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,004 | 0,010 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,004 | 0,004 |
| Communication savante | 0,004 | 0,003 |
| Science ouverte | 0,001 | 0,004 |
| Intégrité de la recherche | 0,001 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,005 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».