Abstract B019: “It's probably just hemorrhoids”: A qualitative exploration of psychosocial and lifestyle changes and challenges accompanying an early-onset colorectal cancer diagnosis
Notice bibliographique
Résumé
Abstract Background: Colorectal cancer (CRC) among adults aged < 50 years (early-onset CRC [EOCRC]) is projected to be the leading cause of cancer-related death by 2030. Unanswered questions remain regarding the effects of EOCRC on quality-of-life and psychosocial outcomes affected by an EOCRC. This qualitative study explored the lived experiences and perceptions of a sample of adult EOCRC survivors in the United States through one-on-one interviews. Methods: An early-onset CRC advocate survivor team (AST) member led 27 structured interviews virtually with adults diagnosed with early-onset CRC (mean age at diagnosis = 33.93±5.90). The interview guide consisted of 10 questions, which was co-developed by the lead author, third author, and two AST members. Data was analyzed using a 9-step inductive approach, where a hybrid coding approach was employed that involved both a priori codes as well as any concepts, actions, relationships, and meanings that differed from the pre-set codes. Results: Study participants were from across the country, with over half living in the Southern (44.4%) or Midwestern (22.2%) regions. Most participants were women (66.6%) and self-identified as Non-Hispanic White (85.2%). The age of study participants at the time of interview ranged from 28 to 53 years (mean age = 40.19 ± 5.99) and their age at diagnosis ranged from 26 to 44 years (mean age at diagnosis = 33.93 ± 5.90). Six overarching themes were identified from the interviews with two to three subthemes: 1) Signs and Symptoms (Self-Misdiagnosis, Provider Misdiagnosis), 2) Risk Factors (Family History, Lifestyle, Blame/Defensiveness), 3) System-Level Factors (Provider Recommendations, Navigating Care/Pace of Treatment, Perceptions of Medical Workers), 4) Quality of Life (Fertility and/or Sexual Health, Mental Health/Therapy, Self-Advocacy), 5) Social Support (Support Groups and Family, Friends, and Others), and 6) Reflection (Prevention, Personal, Advocacy). Conclusions: The overall lived-experiences gathered from interviewees highlights specific needs of early-onset CRC identify patients that can be used to inform educational material and comprehensive care. Although the causes of the increase in young-onset CRC remain unknown, psychosocial as well as lifestyle changes and challenges should be considered during treatment and future intervention as well as throughout survivorship in this younger population of CRC patients. Impact: The lived experiences and perceptions of EOCRC survivors highlight specific needs of this population that can inform both educational materials and comprehensive care. Citation Format: Charles R. Rogers, Kevin M. Korous, Mary A. De Vera, Aasma Shaukat, Ellen Brooks, Candace Henley, Wenora Johnson, Tiana N. Rogers. “It's probably just hemorrhoids”: A qualitative exploration of psychosocial and lifestyle changes and challenges accompanying an early-onset colorectal cancer diagnosis [abstract]. In: Proceedings of the 16th AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2023 Sep 29-Oct 2;Orlando, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2023;32(12 Suppl):Abstract nr B019.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,011 | 0,014 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,008 | 0,007 |
| Communication savante | 0,003 | 0,003 |
| Science ouverte | 0,002 | 0,005 |
| Intégrité de la recherche | 0,002 | 0,003 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,005 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».