Notice bibliographique
Résumé
It is commonly viewed that siblings of those with disabilities are positioned as caregivers and tasked to support their sibling with a disability. Family members of those with disabilities are particularly viewed as impacted heavily by the burden of care placed on them. However, truth be told, there are many influential and positive attributes that are acquired by one’s upbringing and living with a family member who has a disability. Typically overlooked by researchers in the field, there are dismissed perceptions of family members that should be accounted for. Further, individuals who have grown up alongside of members of their family with a disability have unique perceptions that influence their self-perceptions and ways of living. This study found that an individual with a sibling with a disability has experienced in childhood up to current time circumstantial practices relative to their family position which influence the way they currently carry and perceive themselves. Further indicated in this study is the importance of family relationships, dynamics and stability in support of the care to the sibling with a disability. Particular qualities and characteristics are highlighted in this study to showcase the intricate yet complex lives of individuals with siblings who have disabilities. Proven is the need for augmented initiatives and enhanced supports to address gaps and needs among individual family members who are related to someone with a disability. The objective of this study was to gain a deeper understanding of how individuals perceive themselves based on their experiences growing up with a family member who identifies as having a disability. The aim was to investigate the perceived experiences of these individuals and their reflections on their personal identities and sense of perception. A total of 10 individuals over the age of 18 who have siblings with disabilities from across Ontario, Canada completed virtual or in-person interviews. To reflect participants' upbringing, current experiences, and anticipated future roles within their families, themes naturally surfaced and were identified as means to represent consistent data responses. In general, the findings revealed a range of experiences that impact their sense of self and family responsibilities. Many unique and positive perceptions of self were conveyed by participants in reference to their lived experiences. This study fills gaps in disability studies by highlighting the positive outcomes of sibling relationships and the unique lived experiences of individuals who have siblings with disabilities. It emphasizes the importance of recognizing an individuals’ experiences and stories relative to having a sibling with a disability.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,003 | 0,001 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,001 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».