POS0293-PARE PROVIDING SUPPORT TO TRANSITION YOUNG ADULTS FROM PEDIATRIC TO ADULT RHEUMATOLOGY: ONE CLINIC’S PERSPECTIVE
Notice bibliographique
Résumé
Background: Young adults who transition from pediatric to adult healthcare providers lack adequate support to help them make a successful transfer. Objectives: A needs assessment survey was conducted in Canada in 2021 which identified that the highest priority was “supporting patient education for transition to adult rheumatology health system.” With the establishment of a formal transition clinic, we hoped to empower young adults to independently navigate the healthcare system at our institution. Methods: We set up two transition clinics from January to April 2023. We coordinated with the pediatric rheumatology team to schedule patients into the transition clinics and obtained an IRB from our institution. Inclusion criteria included being 18-25 years old, established with a pediatric rheumatologist, and carrying a rheumatologic diagnosis. Appointments lasted 1.5 hours and included a new patient visit, a session with the social worker and pharmacist, and additional medical education with the rheumatology fellow. The Transition Readiness Assessment Questionnaire (TRAQ) was administered prior to the visit. A modified American College of Rheumatology Self- Care Assessment for Young Adults and an assessment of the transition clinic were given after the visit. Results: Of the six patients recruited into the transition clinic, two patients cited time constraints and declined the additional services. Four patients agreed to move forward with the extended visit, of which two were female and two were male. Three were between the ages of 18-21. One was between the ages of 22-25 years old. All had seen pediatric rheumatology for less than five years. Three had additional visits with their pediatric rheumatologist. The TRAQ survey revealed topics that the patients were most uncomfortable with included navigating health insurance, making a list of questions to ask their doctor, and managing finances. With the modified ACR Self-Care Assessment for Young Adults, patients felt uncomfortable with making refills, giving themselves injectable medications, not requiring anesthesia for joint injections, and treating flares. When evaluating the transition clinic, there was some dissatisfaction regarding addressing smoking, drugs, alcohol, sexual health, insurance, and confidence with disease management. Overall, patients recommended the transition clinic and enjoyed meeting the rheumatology team, learning about their disease and different topics. One patient expressed wanting to learn more about his/her disease. Conclusion: Young adults transitioning from pediatric to adult rheumatology need additional support as they are learning to assume ownership of their medical care. While this trial had a limited patient sample, it identified topics that patients identified being uncomfortable with. The transition clinic is overall a positive experience for patients with additional education time and support from social work and pharmacy. REFERENCES: NIL. Acknowledgements: NIL. Disclosure of Interests: None declared.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,003 | 0,004 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,004 | 0,001 |
| Communication savante | 0,005 | 0,002 |
| Science ouverte | 0,001 | 0,003 |
| Intégrité de la recherche | 0,005 | 0,004 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,059 | 0,007 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».