Implications of Public Disclosure of Personal Information in Alert Systems for People Living with Dementia who go Missing: A Qualitative Descriptive Study (Preprint)
Notice bibliographique
Résumé
<sec> <title>BACKGROUND</title> People living with dementia are at risk of getting lost and going missing due to memory loss, confusion, and disorientation. Missing incidents involving people living with dementia are increasing. Alert systems such as Community ASAP can promote community engagement in locating missing persons with dementia and aid search and rescue efforts. However, implications of public disclosure of personal information such as name, age, sex, and physical descriptions within such alert systems have yet to be explored. </sec> <sec> <title>OBJECTIVE</title> This study aimed to identify and discuss the implications of public disclosure of personal information in Community ASAP for people living with dementia at risk of going missing. </sec> <sec> <title>METHODS</title> This study used a qualitative descriptive research design drawing from naturalistic inquiry. Nineteen participants including people living with dementia, care partners, and service providers were recruited from Ontario, Alberta, and British Columbia, Canada. Semi-structured interviews were used to explore participants’ perspectives on the perceived implications of the release of personal information when using Community ASAP. NVivo 12 was used to manage data and conventional content analysis conducted to identify key themes of the implications of public disclosure of personal information in Community ASAP. </sec> <sec> <title>RESULTS</title> Participants were 10 females and 9 males. Three were people living with dementia, five were care partners, four were first responders, and seven were service providers. Four key themes were identified as implications of public disclosure of personal information in Community ASAP: Right to autonomy, safety versus privacy, informed and knowledgeable consent, and stigmatization. Participants discussed how the public disclosure of personal information in Community ASAP could undermine a person’s choice not to be found and contribute to stigmatization. Participants emphasized a need to balance safety and privacy concerns. Informed and knowledgeable consent is important when using an alert system to locate missing persons with dementia. </sec> <sec> <title>CONCLUSIONS</title> Community ASAP can promote community engagement in locating missing persons with dementia. However, the public disclosure of personal information in alert systems has implications. Users’ right to autonomy, a balance between safety and privacy, informed and knowledgeable consent, and risks for stigmatization are perceived impacts of disclosure of personal information in alert systems. </sec>
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Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,002 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».