N08 Perceived patients’ and nurses’ perspective on barriers to address sexual wellbeing in IBD. An international qualitative study
Notice bibliographique
Résumé
Abstract Background Addressing sexual wellbeing (SWB) in inflammatory bowel disease (IBD) clinical practice remains a challenge for both patients and nurses. While existing evidence highlights patients' need for these discussions, little is known about the barriers to such conversations from both the patients’ and nurses’ perspectives. Evidence of healthcare professionals' perspectives on addressing SWB is known from oncology, dermatology and cardiovascular nursing perspective, but not from IBD specialist nurses’ perspective. This study aimed to explore perceived barriers to addressing SWB concerns, from the perspectives of IBD patients and specialist IBD nurses. Methods This international qualitative study further analysed prior anonymous interviews with patients and nurses to identify and compare perceived barriers, with a view to inform practice improvements. Qualitative content analysis was used to analyse the data. Results The analysis included interviews from 60 IBD patients (43 women, 17 men) across the UK, US, Canada, Ireland, and Australia, as well as 29 IBD specialist nurses (24 women, 5 men) from Japan, the UK, Ireland, Canada, and Australia. The overarching theme developed was Is difficult to discuss sexual wellbeing. Several shared barriers were identified across both groups under the following main themes: Limited time and space to address sexual wellbeing, Demographic differences, and Feelings of shame and embarrassment. Additionally, nurses reported a Lack of training, and patients reported Lack of understanding how disease impacts sexual wellbeing. The common perspectives on perceived barriers related to challenges in initiating these conversations highlight the need to address the stigma surrounding illness, SWB and bowel symptoms, and the need to normalise sensitive topics in clinical setting. The lack of confidence from nurses in addressing SWB grounded in absence of training corresponded to patients’ perspective on nurses’ lack of understanding of disease impact. Conclusion Gaining insights from both patients and nurses may help identify strategies to overcome these barriers. Although certain challenges such as limited time and space arise from organisational and environmental factors, many obstacles could be tackled directly to enhance communication and SWB care, ultimately improving the patient experience. Addressing the stigmatising nature of sexuality and gastrointestinal symptoms calls for greater efforts to integrate SWB discussions into routine clinical appointments, and adequade training for nurses to improve their confidence in supporting SWB concerns in IBD. References Fourie, S., Norton, C., Jackson, D., & Czuber-Dochan, W. (2021). ‘These Discussions Aren’t Happening’: Experiences of People Living with Inflammatory Bowel Disease and Talking About Sexual Well-being with Health Care Professionals. Journal of Crohn’s and Colitis, 1–8. https://doi.org/10.1093/ecco-jcc/jjab043 Traa, M. J., De Vries, J., Roukema, J. A., Rutten, H. J. T., & Den Oudsten, B. L. (2014). The sexual health care needs after colorectal cancer: The view of patients, partners, and health care professionals. Supportive Care in Cancer, 22(3), 763–772. https://doi.org/10.1007/s00520-013-2032-z Flynn, K. E., Reese, J. B., Jeffery, D. D., Abernethy, A. P., Lin, L., Shelby, R. A., Porter, L. S., Dombeck, C. B., & Weinfurt, K. P. (2012). Patient experiences with communication about sex during and after treatment for cancer. Psycho-Oncology, 21(6), 594–601. https://doi.org/10.1002/pon.1947
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Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,001 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».