A134 TRANSITION FROM PEDIATRIC TO ADULT CARE WITH EOSINOPHILIC ESOPHAGITIS: A PATIENT EXPERIENCE SURVEY
Notice bibliographique
Résumé
Abstract Background Healthcare transition for pediatric patients with chronic gastrointestinal diseases is a coordinated process that requires multidisciplinary collaboration to improve an otherwise challenging time for patients and their families. While this process has been explored in other areas such as inflammatory bowel disease, the transition experience has not been well characterized in eosinophilic esophagitis (EoE). Aims To better understand and characterize the experiences and attitudes of patients transition from pediatric to adult care with EoE in British Columbia. Methods We conducted an online, anonymous, self-administered, 10–15-minute survey of adult patients who had recently transitioned to adult care. EoE patients age ≥ 19 who were discharged from the EoE clinic at BC Children’s Hospital within the past three years and referred to adult gastroenterology at the Digestive Disease’s Centre in Vancouver, British Columbia were invited to participate. The survey included demographics and questions assessing patients’ pre-transition readiness based on a modified Transition Readiness Assessment Questionnaire (TRAQ), and post-transition challenges via a 5-point Likert scale. Free text entries were included to allow for qualitative thematic analysis of patients’ responses. Results Of the twenty patients identified who met inclusion criteria, eleven (55%) completed the survey. Only four (36.3%) patients at the time of transition felt prepared to graduate into adult care. While six (54.5%) reported feeling satisfied with the transition process, four (36.3%) felt that the process was more challenging than expected. Seven (63.6%) patients felt that communication between their pediatric and adult physicians was inadequate. Moreover, four (36.3%) patients felt they lost access to non-gastroenterology specialists such as allergists and pediatricians, as well as allied health care members after transition into adult care. Thematic analysis of patients’ free-text responses revealed that disjointed communication between healthcare teams, new therapeutic relationships, and loss of access to medical experts were three concerning themes for transitioning patients. Ten (90.9%) patients agreed a joint clinic between pediatric and adult gastroenterology would have improved their transition experience. Conclusions These preliminary data from our ongoing study highlight the challenges associated with EoE pediatric-to-adult transition. Given the identified unifying themes of inadequate communication between care providers, a joint transition EoE clinic between pediatric and adult physicians would be a potential solution to significantly streamline this process. Figure 1: Patient attitudes regarding (A) pretransition readiness using a modified Transition Readiness Assessment Questionnaire (TRAQ) and (B) post-transition experience. Funding Agencies None
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,002 | 0,004 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,001 | 0,001 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,000 | 0,001 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,001 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».