The health experience of children, adolescents and their families during the COVID-19 pandemic: an exploratory qualitative study in pediatric homecare
Notice bibliographique
Résumé
Introduction: The COVID-19 pandemic has had a significant impact on society. Families with an ill child were more vulnerable to that context. To the best of our knowledge, no study has explored the health experience of the entire family during the COVID-19 pandemic by giving them a voice. Thus, our study aimed to explore the health experiences of children and adolescents aged 11 years and older, as well as their families, who received pediatric home care in the canton of Vaud, Switzerland, during this pandemic for an initial health problem or as part of ongoing care. Methods: A qualitative approach was employed, including 27 semi-structured interviews (but for quality reasons only 25 were coded) with children and adolescents aged ≥ 11 years and their family members who received pediatric home nursing care in the canton of Vaud. The interview guide was based on the Calgary Family Assessment and Intervention Model. Data were collected from February to April 2023 and analyzed using an inductive and deductive approach based on the theoretical framework. The total duration of the interviews is 958 minutes, and they lasted between 15 and 80 minutes. Results: The findings highlight that families with an ill child face numerous challenges at individual, familial, and community levels. They were perceived heterogeneously between the participants. For instance, government measures were sometimes perceived as precious resources and sometimes not. While some challenges are exacerbated by the pandemic, others are unrelated. However, it is important to emphasize that these families also possess a variety of resources that stem from the same systems levels. Practical needs as prioritized access to food delivery were highlight by parents, specially mothers who seemed to support the majority of the burden. Conclusions and implications: Despite their remarkable resilience, families experienced difficulties during the COVID-19 pandemic. This underscores the need to learn from this experience to prepare for the future better. some measures must also be quickly implemented to counter the long-term deleterious effects of the pandemic, especially regarding the health of children and adolescents particularly in terms of psychosocial support for families. A better focus should be made on siblings to take care of them as they are to often the great forgotten ones.
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Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,009 | 0,009 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,001 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,001 | 0,002 |
| Études des sciences et des technologies | 0,010 | 0,008 |
| Communication savante | 0,004 | 0,003 |
| Science ouverte | 0,002 | 0,005 |
| Intégrité de la recherche | 0,002 | 0,003 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,003 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».