Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?
Notice bibliographique
Résumé
BACKGROUND: Supporting transition from paediatric to adult healthcare is essential for the long-term well-being of paediatric cancer survivors. Guided by an implementation science approach, our overall programme of research seeks to integrate transition readiness screening in the routine care of paediatric cancer survivors, using the validated Transition Readiness Assessment Questionnaire (TRAQ). To plan for the screening implementation, the primary objective of this study was to first assess paediatric cancer survivors' current experiences with transition preparation and their preferences for screening and resources. A secondary focus group with parents was also conducted to complement youth perspectives. METHODS: Focus groups were conducted with 14- to 18-year-old paediatric cancer survivors (n = 13) and parents (n = 6). Focus groups explored perceptions of care at the long-term follow-up clinic, transition preparedness, preferences for TRAQ administration (e.g., format, moment and location) and preferences for transition readiness resources. Interviews were analysed with an inductive thematic analysis approach. RESULTS: This study identified several barriers to TRAQ implementation, including adolescents' lack of transition awareness, attachment to paediatric care and parental distress. Unclear TRAQ items were also noted as a challenge for adolescents. Strategies to address these barriers include regular discussions with healthcare providers, a comprehensive transition resource website, addressing emotional needs, providing parent guidance and offering flexible TRAQ administration options, for example, by leveraging technology (QR codes, choice of online or paper administration). CONCLUSION: This study highlighted the importance of addressing the informational and emotional needs of adolescents and parents for implementation, notably by engaging in discussions with clinicians and tailoring online transition readiness resources. Preferences and suggestions for TRAQ administration and resources will be integrated to align with patients and parents' needs and optimize implementation. KEY MESSAGES: The study identified key barriers to TRAQ implementation, including paediatric cancer survivors' lack of awareness of transition and understanding of the TRAQ, attachment to paediatric care and parental distress about long-term follow-up. Participants suggested strategies such as offering the TRAQ online, integrating it into wait times and enhancing awareness through individualized discussions. Addressing emotional needs through dedicated resources and incorporating discussions about transition-related distress into the TRAQ implementation process is crucial. Participants preferred online resources over paper formats, and a webpage on transition resources was acceptable to both adolescents and parents. Results of this study are an essential first step in the preparation of a successful TRAQ implementation, with findings allowing better planning and adaptation of implementation to the local context and to adolescents and parents.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,001 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».