Patient-oriented research– it’s personal: two BC SUPPORT unit patient partners sharing their journey in patient-oriented research
Notice bibliographique
Résumé
Patient-oriented research is becoming an established way of healthcare research in Canada. It is supported by the Strategy for Patient-oriented Research (SPOR), launched by the Canadian Institutes of Health Research. One core element of SPOR is the SUpport for People and Patient-oriented Research and Trials (SUPPORT) Units, which is tasked to promote and facilitate patient-oriented research across provinces and territories in the country. Under the strategy, patient partners are welcomed and engaged as equal team members from the beginning to the very end of health research projects to share their lived experience with a medical condition and their interactions with healthcare systems. In this Commentary, two patient partners reflect on how they worked hand-in-hand with the BC SUPPORT Unit to co-develop activities to support patient-oriented research. This was achieved through mutual understanding, building trust, and staying true to SPOR values. Through a variety of roles - including serving on committees and working groups, initiating research projects, and participating in knowledge translation activities like webinars and conferences, the patient partners and the Unit grew stronger together. This commentary exemplifies how a national health research strategy can foster alliances, where individuals within an organization encourage and empower each other to drive progress in health research. Patient-oriented research is becoming an established mode of healthcare research in Canada. It is supported by the Strategy for Patient-oriented Research (SPOR), launched by the Canadian Institutes of Health Research. One core element of SPOR is the SUpport for People and Patient-oriented Research and Trials (SUPPORT) Units, which is tasked to promote and facilitate patient-oriented research across provinces and territories in the country. Under the strategy, patient partners are welcomed and engaged as equal team members from the beginning to the very end of health research projects to share their lived experience with a medical condition and their interactions with healthcare systems. In this Commentary, two patient partners reflect on how they worked hand-in-hand with the BC SUPPORT Unit to co-develop activities to support patient-oriented research. This was achieved through mutual understanding, building trust, and staying true to SPOR values. Through a variety of roles - including serving on committees and working groups, initiating research projects, and participating in knowledge translation activities like webinars and conferences, the patient partners and the Unit grew stronger together. This commentary exemplifies how a national health research strategy can foster alliances, where individuals within an organization encourage and empower each other to drive progress in health research.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,046 | 0,001 |
| Méta-épidémiologie (sens strict) | 0,002 | 0,001 |
| Méta-épidémiologie (sens large) | 0,002 | 0,000 |
| Bibliométrie | 0,008 | 0,005 |
| Études des sciences et des technologies | 0,010 | 0,001 |
| Communication savante | 0,000 | 0,001 |
| Science ouverte | 0,002 | 0,008 |
| Intégrité de la recherche | 0,002 | 0,035 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,004 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; les deux têtes enseignantes s’accordent sur ce qui est montré ici.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».