Engaging young adults with disabilities and their families to improve community programming: A Photovoice project
Notice bibliographique
Résumé
March of Dimes Canada (MODC) conducted community consultations and found that 58% of parents strongly agreed that there were gaps in services available for young people with disabilities. This led to MODC conducting community-based research to identify new ways to provide family-centered services and programming, while also deepening community connections. We conducted an arts-based research project using Photovoice methodology, which is a powerful research method that has been used by marginalized communities for many years to capture their experiences and perspectives. The study population for this project included youth aged 6 to 25 who are living with a disability; and parents/guardians of children/youth living with a disability. Participants were asked to take and caption photos based on a series of prompts that focused on: () what participants viewed as program strengths and gaps, (2) how they navigate the social and health systems, (3) participants interests, hopes and dreams, and (4) the barriers they face in their everyday lives. Between January 2023 and May 2024, a total of 29 participants from across Canada completed four separate photo activities exploring the foci described above. The participants also completed interviews and focus groups to further discuss their experiences and share their reflections on the photos they captured. Study activities were designed and reviewed by youth and parent advisory committees, ensuring the photo prompts, methods, interviews and focus group discussions were grounded in community interests and needs. To date we have identified five overarching findings: ) Community programs and services are not inclusive and accessible for young people with disabilities and their families/caregivers, with transportation presenting a key barrier; 2) community programs and services do not align with the actual needs of young people with disabilities, specifically young people are looking to connect socially with others and build a sense of belonging; 3) there are many unmet needs for families/caregivers of young people with disabilities, including supporting their mental health and well-being; 4) it is difficult to learn about and navigate both health and social care services; and 5) the transition to adulthood continues to be difficult for young people with disabilities. Currently, our organization is using these findings to improve current programming and inform the development of new, family-centered programming across Canada. This study has shown that young people with disabilities and their families still face many challenges when seeking the support they need to thrive in their communities. It is clear that as we move to improve integrated health and social care systems, we need to authentically engage with communities to ensure we are meeting their actual needs. Organizations and service providers also need to think carefully about accessibility, from transportation, to navigating physical and online spaces, as well easily accessing the right care at the right time. Using the findings from this work to inform program design and improvement is imperative to creating an accessible and barrier-free Canada where everyone can thrive.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,005 | 0,004 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,018 | 0,004 |
| Communication savante | 0,003 | 0,001 |
| Science ouverte | 0,002 | 0,005 |
| Intégrité de la recherche | 0,001 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,005 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».