“Inclusivity requires an active effort”: building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research
Notice bibliographique
Résumé
BACKGROUND: Engaging people with lived/living experience and caregivers (PLLEX-C) in mental health and substance use health research has many advantages for scientists, research staff, and PLLEX-C. However, research teams must be cognizant of the wide spectrum of human diversity. As such, engagement settings that are inclusive and reflect the diversity of the populations being served are essential to meaningful and impactful research. OBJECTIVE: The aim of this qualitative descriptive study was to understand the perspectives of PLLEX-C on how to build inclusive and diverse research spaces when engaging PLLEX-C in mental health and substance use health research. METHODS: We recruited 20 PLLEX-C with experience engaging in mental health and substance use health research to participate in one of five focus group discussions. The focus groups were audio recorded and transcribed, with codebook thematic analysis conducted using a deductive and inductive approach. This study team included a Lived and Living Experience and Caregiver Working Group throughout all phases of the research project. RESULTS: Four themes were identified across the five focus group discussions: 1) Acknowledge that diversity is inclusive of different factors and this needs to be reflected in the recruitment process to improve the research. 2) Remove barriers of entry into the research space. 3) Ensure that the scientists and staff are trained and skilled in inclusive and diverse engagement. 4) Build a safe and equitable engagement space. Within these themes, subthemes were also identified and described with illustrative quotes. CONCLUSIONS: Identifying ways to ensure research engagement settings are inclusive and diverse for all those involved requires an intentional and active effort at all stages of the research process. This includes not only employing various recruitment strategies to identify more diverse PLLEX-C, but also continuous, ongoing training for researchers to ensure engagement is culturally sensitive, anti-discriminatory, and bias-free. Prioritizing research teams that are inclusive and diverse can foster an engagement experience that is more meaningful, authentic, and empowering.
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Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,015 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,000 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,009 | 0,001 |
| Communication savante | 0,000 | 0,001 |
| Science ouverte | 0,000 | 0,002 |
| Intégrité de la recherche | 0,000 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».