Symptom management, adherence to therapy, and filling the gaps of medical cannabis therapy: a qualitative study on the importance of nursing consultations for fibromyalgia patients
Notice bibliographique
Résumé
BACKGROUND: In agreement with the latest European League Against Rheumatism (EULAR) on patient education for fibromyalgia (FM) treatment, nurses should be involved in the therapeutic plan of FM patients to provide information about the disease and pharmacological and non-pharmacological approaches that can be used to mitigate symptoms, including the use of medical cannabis. This study aims to demonstrate the key role of nursing educational intervention to improve self-care and therapy adherence by FM patients. DESIGN, SETTING, PARTICIPANTS AND INTERVENTIONS: All potential subjects, solicited from the Italian Fibromyalgia Syndrome Association (AISF Onlus) address book (n = 1100), were provided with a description of the study as well as a privacy protection form (as an e-mail) subsequent to authorization from the AISF. In this qualitative study, nurse educational intervention (30 min duration) was offered via videoconference to FM patients who were taking and/or had taken medical cannabis as well as patients not in therapy but interested in taking it, who matched the inclusion criteria. Two weeks before the educational intervention, subjects (n = 30) completed the Revised Fibromyalgia Impact Questionnaire (FIQR) and the A-14 Scale on-line. Two weeks following intervention, subjects repeated the FIQR and A-14 Scale in addition to the Clinical Global Impression - Global Improvement (CGI-I) Scale. RESULTS: Historic diagnoses of subjects included terms such as “insane”, “imaginary ill”, and “whiny”; as well, their physical conditions were underestimated by their immediate families. All subjects have problematic employment histories which consistently identified their varied employments as physically too demanding. Over time, increased physician- and societal-awareness, resulted in all subjects being diagnosed with FM; consequently, all subjects reported a strong desire to become well-informed about FM and its treatment. Although medical cannabis (MC) was an available therapy, twenty subjects reported that cannabis had never been proposed despite years of ineffective therapies. CONCLUSIONS: The subjects were disappointed and discouraged by the widespread ignorance about their condition and the lack of recognition by the National Health System. Our findings suggest that patients with FM require specialist clinical advice from initial diagnosis through to the end of treatment, and that nurses with in-depth knowledge of fibromyalgia and treatment options are the best professionals to perform this task; furthermore, healthcare professionals should receive a better education about MC-based treatment regimens. REGISTRATION: This study protocol conforms to the Declaration of Helsinki and was approved by the Ethics Committee of the University of Milano-Bicocca (Protocol 545 9-7-2020) and registered on Clinicaltrials.gov NCT05247411. Written informed consent for participation in the study and publication of the results was obtained from all respondents.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,006 | 0,002 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,000 | 0,001 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,001 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».