Spanish translation, cultural, and content validation of the Mouth Impairment and Disability Assessment in a prospective, longitudinal evaluation of pediatric patients with facial burn injuries
Notice bibliographique
Résumé
The Mouth Impairment and Disability Assessment (MIDA) was developed to provide clinicians with an outcome measure that thoroughly and objectively evaluates the impairment and disabilities associated with burn injuries of the face involving the mouth. However, thus far, it is only available in English and French-Canadian and has not been used with pediatric burn survivors. Additionally, there is limited longitudinal outcome data describing the recovery trajectory associated with burn injuries of the mouth. Thus, the purpose of this study was to translate the MIDA into Spanish, validate the content with the pediatric burn survivor population who have sustained a burn injury involving their mouth, and prospectively collect data to document the recovery profile and examine the psychometric properties. METHODS: This was a prospective, observational case series of pediatric burn survivors. Prior to commencing patient recruitment, a forward-backward translation and cultural adaptation process was undertaken to create a Spanish version of the MIDA. English- and Spanish-speaking pediatric burn survivors who met the inclusion criteria and had signed the informed consent were evaluated using the MIDA at approximately one month, three months, six months, and 12 months post-burn. Individual and subscale summary data from the MIDA are reported. Construct validity was assessed by examining the correlations between MIDA subscale scores at baseline and measures of vertical and horizontal mouth opening. RESULTS: Sixteen predominantly Hispanic (75 %) pediatric burn survivors were evaluated approximately one-month post-burn, eleven were evaluated at three and six months, and nine at twelve months. The majority were male (62.5 %) with a mean age of 10.4 years old and mean total body surface area burn of 33.3 %. The median number of surgeries was two, with a median of one involving the face, mouth, or neck. Content validity was confirmed through cognitive debriefing and self-reported difficulties with all items within the measure at various points across time. The recovery profile varied across time, with many reporting a reduction in function between one and three months, most reporting an improvement by six or twelve months, but some continuing to experience extreme difficulty or dissatisfaction at twelve months. DISCUSSION: The Spanish version of the MIDA can now be used with the burn survivor population to evaluate the outcome of face and neck burns that may result in mouth impairment and disability. In addition, it proved to be a valid measure for quantifying the challenges that arise for pediatric burn survivors. There is a need for future research to investigate which treatment interventions optimize long-term outcomes.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».