Case-study research to investigate how family-systems-centered therapeutic conversations support families of a child with intellectual disability
Notice bibliographique
Résumé
Background and Objectives: Parents of children with intellectual disability are at risk of physical and mental symptoms and chronic sorrow. Family-systems-centered therapeutic conversations improve family functioning and quality of life. The Family Systems Care Unit (FSCU) is a university-run real-ife lab offering nurse-led therapeutic conversations to families with health-related burdens. The conversations are based on the Calgary Family Assessment and Intervention Models and the Illness Beliefs Model. The objective of this study was to understand how the therapeutic conversations were supportive of two exemplary families raising a child with intellectual disability. Design and Methods: Two qualitative longitudinal embedded single-case studies were applied. Advanced practice nurses specialized in family systems care provided three therapeutic conversations to each family at the FSCU. We asked for consent for audio or video recording and observing the therapeutic conversations through a one-way window for research. The conversations were transcribed verbatim and analyzed with inductive-deductive qualitative coding methods. Results: These single-case studies provided a nuanced understanding of the families’ needs and how they found support in the therapeutic conversations. The common needs of the two families were finding peace and a feeling of belonging as a family as well as coping with feelings of guilt and blame. The first family consisted of a single mother of two children who experienced deep suffering due to various severe challenges burdening her physical and mental health. The burdens and suffering were modeled through the conversations, and the woman gained more ease regarding her situation and suffering. The second family consisted of a couple and an adolescent son. Although exhausted, they were creative in dealing with their challenging everyday life. Through the conversations, they found confidence in continuing to cope with their situation by being given time and space in the conversations to be listened to and to listen to each other. Conclusions: Case-study research is a suitable method for gaining in-depth, multifaceted insights into the complex needs and strengths of families raising a child with intellectual disability and the process and effects of therapeutic conversations. The FSCU real-life lab setting provides support for burdened families while collecting valuable data for research. This makes the real-life lab a design and setting for ethically sensitive and justifiable nursing research.
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Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,023 | 0,033 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,001 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,003 | 0,003 |
| Études des sciences et des technologies | 0,010 | 0,006 |
| Communication savante | 0,004 | 0,005 |
| Science ouverte | 0,003 | 0,005 |
| Intégrité de la recherche | 0,003 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,008 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».