Measuring Daily Activities in Dementia
Notice bibliographique
Résumé
Background: Dementia can impact different aspects of a person’s life, including the ability to conduct daily activities. Observing changes in one’s ability to conduct daily activities is an important outcome to consider when monitoring dementia progression. Caregivers, who may be family members or friends, play an essential part in supporting daily activities of the person living with dementia. However, aiding with daily activities and managing behavioural symptoms caused by dementia can contribute to caregiver distress. Therefore, the objectives of this thesis were: (1) to examine the psychometric properties of activity of daily living (ADL) and instrumental activity of daily living (IADL) questionnaires in older adults with dementia living in the community, and (2) to gain a comprehensive understanding of behaviours and actions associated with dementia care that are most distressing to caregivers. Methods: For the first objective, a systematic review guided by the COsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guidelines was conducted. Measurement properties extracted included validity, reliability, and responsiveness. Risk of bias and quality assessments were performed for all included ADL and IADL questionnaires. For the second objective, we recruited and surveyed caregivers from Canada and the United States of America, caring for persons with dementia. Text responses were coded by two reviewers using the International Classification of Functioning, Disability and Health framework (ICF). Results: For the review, a total of 11 articles were included, yielding 7 different questionnaires. Internal consistency and reliability had sufficient ratings for all included measures, and convergent validity was acceptable overall. However, the quality of evidence across the studies varied. For the second manuscript, survey results identified 613 behaviours and actions distressing and meaningful to caregivers. Caregivers reported daily tasks such as toileting and self-care, as well as behavioural symptoms related to dementia such as agreeableness and impulse control, as distressing when caring for persons with dementia. Conclusions: This thesis focused on evaluating the functional deficits caused by dementia as well as the burden caregivers face when caring for persons living with dementia. Measures that assess functional impairment in persons with dementia can enable a greater understanding of the limitations associated with the condition as well as how to address them. A number of questionnaires that assess ADL and IADL impairments in community-dwelling older adults living with dementia have been identified. However, our results suggest that further research is needed on their psychometric properties. We also found that ADL and IADL impairments, in addition to psychological behaviours, are important from the caregivers’ perspective, further highlighting the importance of assessing these areas in dementia management and progression.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,007 | 0,019 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,002 |
| Bibliométrie | 0,005 | 0,004 |
| Études des sciences et des technologies | 0,001 | 0,001 |
| Communication savante | 0,002 | 0,002 |
| Science ouverte | 0,001 | 0,002 |
| Intégrité de la recherche | 0,001 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,003 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».