Community care providers' perception of dementia in Aboriginal seniors: a qualitative study / by Amy Ashly Gusul

Little research has explored dementia within Aboriginal communities in northwestern
\nOntario; as a result, we know little about the experiences of health service providers in caring for
\nthese populations. This research study focused on community care providers? perceptions of
\ndementia in Aboriginal seniors that reside in rural communities in northwestern Ontario. The
\nstudy used qualitative research methodology. Eight community care providers were contacted
\nthrough purposeful and snowball sampling and were interviewed using open-ended semi-structured
\ninterviews to generate study data. Eight prevalent themes emerged from the data
\nanalysis which was conducted through using the constant comparative method. The emerging
\nthemes include ?Views of Dementia: A Normal Part of Aging?, ?The Inaccessible Population?,
\n?Crisis and Caregiver Issues?, ?Dwindling Services and Supports?, ?Housing?, ?Continuity of
\nCare?, ?Cultural Sensitivity? and ?Bright Future?. The study outlines the experiences of
\ncommunity care providers when caring for Aboriginal seniors with Alzheimer?s disease and
\nrelated dementia and what the care provider?s need to deliver these services. The study is focused
\non care providers who have lived and worked in small rural and/or northern communities for an
\nextended period of time to best reflect the realities of caring for Aboriginal seniors living with
\ndementia in a small community. This study offers a foundation of dementia research in
\nnorthwestern Ontario with hopes to guide further research as well as current and future supports
\nand services for Aboriginal seniors living with dementia in these communities.
\nThe findings indicate the need for the increase of both formal and informal supports and
\nservices in rural and remote communities for Aboriginal seniors with dementia. The research
\nalso exposes the need for educational initiatives surrounding dementia and cultural competency
\namong community care and health care providers in rural northern communities along with the need for awareness and education in the Aboriginal community surrounding Alzheimer?s disease
\nand related dementia. This study suggests that community care providers and organizations need
\nto work together to provide the most effective person-centered, culturally sensitive care for
\nAboriginal seniors and to deliver these required supports and services to seniors in a culturally
\nrespectful way.

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