Safety.net? Care, Charity, and Medical Crowdfunding in Canada
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Notice bibliographique
Résumé
In a country that prides itself on a universal public health insurance system, why are a growing number of people turning to GoFundMe and similar crowdfunding platforms for health-related expenses in Canada, as beneficiaries and contributors? This dissertation argues that while assisting loved ones monetarily in times of need is not a new phenomenon, the increasing use and visibility of personal crowdfunding as a response to illness and injury signals a shift in the ways we think about, and engage in, giving and care relations. This research project offers a critical look at personal medical crowdfunding in Canada through a lens of feminist political economy complemented by multiple approaches to critical discourse analysis. It reveals personal medical crowdfunding as a space and practice that reflects and further cultivates neo-liberal ideals of privatization, individualism, and entrepreneurialism in relation to health-related financial struggles. Discourses and behaviours within the confines of crowdfunding platforms are found to be shaped – and at times, constrained – by the unique dynamics of personal medical crowdfunding as a practice, including “unspoken rules” around personal fundraising etiquette. This dissertation begins by situating the practice of personal medical crowdfunding within a context of neo-liberal re-structuring of Canadian health and social welfare policies which increasingly downloads responsibility for citizen well-being onto individual households and registered charities. Drawing on three sources of data – GoFundMe’s promotional materials, GoFundMe medical campaigns, and in-depth interviews with people who have participated in personal medical crowdfunding as a campaign creator, beneficiary, or contributor – I examine the ways in which crowdfunding discourses produce, reproduce, or challenge “common-sense” ideas about deservingness, responsibility for individual well-being, and health. Despite conflicted feelings amongst interview participants, GoFundMe decisively frames medical crowdfunding as a form of charity. An analysis of medical crowdfunding campaigns further illustrates that campaigns contain discourses of deservingness that characterize the beneficiary as hardworking, generous, and typically, as someone who would “never ask for help” for themself. By touting self-reliance as an honourable trait, crowdfunding discourses reinforce the stigma that many beneficiaries experience when seeking financial assistance for oft dire medical reasons.
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Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,001 |
| Science ouverte | 0,001 | 0,002 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,008 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découle